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08-20-2007, 12:41 PM
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#1
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Senior Member
Join Date: Jan 2007
Location: I live in south Carolins, Anderson.
Posts: 40
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Navelbine/Herceptin
Hi, everyone,
I have been on a taxotere break for a month, but now will start on navelbine along with the herceptin.
My question is what are the possible side effects based on experience.
I will be having another muga this week to check my heart and all labs have been good!
thank you,
kathy
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08-20-2007, 02:29 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Kathy
I have a friend on Navelbine and Herceptin and she is tolerating it very well, she has had no hair loss, feels good and her counts have been consistently good, she is on it weekly for 3 weeks, then off a week, and Herceptin every 3 weeks. Hope it is good to you...it seems to work wonders for many, but you do need a port to get it as it is very caustic to the tissues if it gets outside the vein.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-20-2007, 09:32 PM
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#3
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Senior Member
Join Date: May 2006
Posts: 157
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Hi, Kathy,
I have been on Nalvabine/herceptin for 1 year and 3 months for liver and lung mets, and it is very doable. My hair fell off when I was on Taxotere/Herceptin, now it grew back. I do not take any premedication, and I do not have nausea either. I feel tired sometimes, and I have neuropathy, but my doctor says that it is from Taxotere, not from Nalvabine. I take Nalvabine 2 weeks on, 1 week off, and Herceptin every 3 weeks.
I agree with Sheila that you need a port to receive Nalvabine. I have a port since I was diagnosed in April 2005.
KarlaV.
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08-21-2007, 12:38 AM
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#4
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Here's an article you may be interested in reading about Navelbine/Herceptin -- good results
http://her2support.org/vbulletin/showthread.php?t=29614
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-23-2007, 12:22 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: I live in south Carolins, Anderson.
Posts: 40
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Hi, Everyone,
Thankyou so much!!
I do have a port and my labs have been good, so I am gonna try this again!
Thanks for your time,
hugs,
kathy
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