| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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10-30-2009, 10:53 AM
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#121
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Totally random thoughts and comments
My sister saw Page in concert in Orlando a couple of years ago. He made it through and she did not complain that she did not get her money's worth.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-30-2009, 02:50 PM
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#122
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Totally random thoughts and comments
I work with a guy named J eremy Page and although he is no relation to Jimmy, he had a really great halloween costume today
(how random is THAT?!)
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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11-26-2009, 01:00 PM
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#123
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Totally random thoughts and comments
Where the heck is John Madden? Did he retire?
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For Nicola
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11-26-2009, 06:59 PM
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#124
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Re: Totally random thoughts and comments
John Madden did retire. As you may know, he had a serious fear of flying. He had to drive from one end of the country to other as many as 17 times a year and he said the travel was finally too much for him.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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11-26-2009, 07:05 PM
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#125
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Totally random thoughts and comments
Thanks, Lee! Happy Thanksgiving!
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For Nicola
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11-26-2009, 09:08 PM
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#126
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Re: Totally random thoughts and comments
Right back at you Bill! I hope you had a peaceful Thanksgiving surrounded by loved ones.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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12-18-2009, 02:04 PM
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#127
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Re: Totally random thoughts and comments
I love the colts!!!!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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12-18-2009, 03:01 PM
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#128
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Member
Join Date: Mar 2008
Location: Alaska
Posts: 18
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Re: Totally random thoughts and comments
Breathing in, I calm my body.
Breathing out, I smile...
And once I start smiling, you better get out of the way 
__________________
Enjoy the Day,
Laura
www.laurasjourney.com
ER+PR+Her2Neu+ - I'm just a positive person :D
"Life is a grindstone; whether it grinds you down or polishes you up depends on what you're made of."
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12-26-2009, 10:38 PM
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#129
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: Totally random thoughts and comments
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01-03-2010, 01:33 PM
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#130
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Totally random thoughts and comments
Too funny, Rich! Just got around to clicking your link. Thanks for the laugh!
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For Nicola
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01-04-2010, 12:03 AM
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#131
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: Totally random thoughts and comments
Bill,
Rumor has it they are coming out with a "manscaper" attachment and back trimmer extender pole. For safety, texting will not be allowed when those functions are activated.
Sorry ladies..it's guy thing...usually.
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01-05-2010, 11:36 AM
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#132
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Senior Member
Join Date: Apr 2006
Posts: 131
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Christmas Blessing/Miracle
Hi guys... hope I am putting this thread in the right column???
Hello ya'll.. Normally I have only bad and worse than bad news to report.. I am of course having a big time problem, which I won't go into now... maybe later.. I would like to report to the gang that my ejection fraction rate ( has hovered around 25-30%) since 04, .. is now at a high of 55-60%.(thank you Lord) I say that with sincere meaning. I was in the hospital for 3 days, and they kept a monitor on me nonstop..my cardiologist came by on the 3rd. day, and as he was leaving my room , I asked him, what was my ejection fraction rate was..(fearing the worst). He looked at me and smiled and said it is around 55-60%.. I said,,, that is a Chrismas miracle..!!!! he nodded his head and said something along the lines of ,.... Yes, and are you still taking Coreg?? I said yes, he said , Coreg has been shown to help the ejection fraction rate... I smiled then and said, I prefer to think it is a Christmas Miracle..
so if you have been having some difficulty with your heart as I have been,This is truly a blessing..I will talk to my Onc. and see if other avenues are open to me now!!... I have been smiling since Christmas.. will give the gang an update on my husband in another thread.. He is still hanging on by his fingernails.. awating a lung doner...
Charlotte
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01-05-2010, 11:54 AM
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#133
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Senior Member
Join Date: Apr 2006
Posts: 131
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Christmas Blessing/Miracle
Hi guys... hope I am putting this thread in the right column???
Hello ya'll.. Normally I have only bad and worse than bad news to report.. I am of course having a big time problem, which I won't go into now... maybe later.. I would like to report to the gang that my ejection fraction rate ( has hovered around 25-30%) since 04, .. is now at a high of 55-60%.(thank you Lord) I say that with sincere meaning. I was in the hospital for 3 days, and they kept a monitor on me nonstop..my cardiologist came by on the 3rd. day, and as he was leaving my room , I asked him, what was my ejection fraction rate was..(fearing the worst). He looked at me and smiled and said it is around 55-60%.. I said,,, that is a Chrismas miracle..!!!! he nodded his head and said something along the lines of ,.... Yes, and are you still taking Coreg?? I said yes, he said , Coreg has been shown to help the ejection fraction rate... I smiled then and said, I prefer to think it is a Christmas Miracle..
so if you have been having some difficulty with your heart as I have been,This is truly a blessing..I will talk to my Onc. and see if other avenues are open to me now!!... I have been smiling since Christmas.. will give the gang an update on my husband in another thread.. He is still hanging on by his fingernails.. awating a lung doner...
Charlotte
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06-27-2010, 02:55 PM
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#134
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Member
Join Date: Jun 2010
Location: Deutch
Posts: 22
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Totally random thoughts and comments
Looks like the old Frederick Bed and Breakfast sold- anyone know what is happening there?
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06-30-2010, 07:16 AM
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#135
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Member
Join Date: Sep 2009
Location: Central Michigan
Posts: 5
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Re: Totally random thoughts and comments
I have two little red squirrels at my home. My granddaughter calls them chipmunks. She asked me if one was Alvin. I told her I thought it was Simon. She said "Marna,(her name for me) it must be Feodore. Simon wears glasses!!" Tell me what's not to love about these squirrels? Everytime I see them I call them Alvin and Feodore. Obviously it isn't Simon because neither of them wear glasses!!
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Jean R (roselle)
Age: 53
Stage IIb Grade 3 er+ pr+ Her2+++
Dx 2-10-09
Bilateral Matectomy 2-23-10
No reconstruction
TC/6 rounds finished 7-10-09
Herceptin: finish 4-2-10
Arimidex 9-9 60 mos.
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07-24-2010, 08:30 AM
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#136
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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Re: Totally random thoughts and comments
My neighbor's kid went off to college last year. He had always been a strict vegan. Well, he was so broke in college and never had money for food so he became a "freegan".
Maureen
(the best medicine I have EVER received was reading this thread)
p.s. Oh how I miss your posts Vicki
p.s.s. I had to Google chard head. would still appreciate an explanation.
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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07-24-2010, 10:55 AM
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#137
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: Totally random thoughts and comments
Hey MMMMMM
Do you really need chard head explained???? Cuz I can do that for you.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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01-04-2011, 10:59 AM
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#138
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Re: Totally random thoughts and comments
I just read that there is a Federal law that prohibits the commercial mixing of beer and wine. Do we really need a law like that? Wouldn't the human sense of taste prevent the mixing of beer and wine all by itself? Maybe the Congress should look at laws to ban anchovy ice cream if they have so much time on their hands.
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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01-05-2011, 07:56 AM
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#139
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: Totally random thoughts and comments
It's legal here providing you add 40 millilitres of socialist flour.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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01-05-2011, 10:59 AM
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#140
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Totally random thoughts and comments
I was sure Lee had made it up until I located this site:
http://www.totalcriminaldefense.com/...best-bans.aspx
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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