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08-02-2007, 05:52 PM
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#1
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Encouraging News re: Possible Brain Mets
Ihad my treatment today and saw my oncologist. We discussed the results of my brain scan and scheduled MRI (tomorrow). She is very encouraged that what showed up on the scan probably is not brain mets.
The report reads: "a solitary punctate area only seen on one slice located at the gray/white junction along the posterior right parietal lobe. This may represent volume averaging through a prominent vessel. However, given the patient's history of Stage IV breast cancer recommend follow-up MRI to ensure this does not represent a samll early metastatic deposit"
She promised that if she receives the report tomorrow she will call me. Otherwise I will hear from her Monday. It sure has put my mind at ease.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-02-2007, 06:08 PM
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#2
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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ooough....sounds very encouraging....have been thinking of you all day.
Will continue to keep you on top of my list for special prayers!
I feel confident that you will be posting positive news.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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08-02-2007, 06:08 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Oh Kate.........that's just what I wanted to hear from you. You made my night. Such wonderful news. I am confident it is nothing and am happy they are "on top of things" for your sake.
I hope treatment was uneventful for you and you are feeling alright.
Huge hugs and a prayer for God's Peace to surround such a wonderful person.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-02-2007, 06:14 PM
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#4
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Kate,
Okay, so far so good. I have my fingers, legs, arms and toes crossed (okay maybe not my toes). I will say an extra prayer but it does sound really encouraging.
Carolyn
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08-02-2007, 06:46 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Kate,
Its looking like nothing!
Sassy
________
Medical Marijuana Card
Last edited by sassy; 08-22-2011 at 09:25 AM..
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08-02-2007, 07:58 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: southern california
Posts: 287
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Sounds like it could be a big Hoorah!!!
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08-02-2007, 08:26 PM
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#7
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Senior Member
Join Date: Aug 2006
Posts: 492
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I bet you want off this rollercoaster ride! Best of luck and thinking of you Kate.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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08-02-2007, 08:38 PM
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#8
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Sounds good
SIGH - as in a big SIGH OF RELIEF!! Hope that the MRI confirms this is NADA, NOTHING, GOURNISHT!!
all the best
caya.
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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08-03-2007, 04:43 AM
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#9
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Senior Member
Join Date: Jan 2007
Location: Massachusetts
Posts: 82
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The report does sound like it might not be mets. I hope you get the phone call today. It's awful to wait over the weekend.
Hugs,
Jean C.
__________________
IDC Stage IIIA
Diagnosed Nov 2006 (routine mammogram), age 51
Lumpectomy, lymph node dissection Dec 2006
3 cm tumor, 8 cancerous lymph nodes
Grade 3, ER/PR -, HER-2/neu +++ (by FISH, average 20 copies per cell)
A/C x 4, Taxol x 12, Herceptin x 47 weeks
35 radiation treatments
Completed treatment on April 3, 2008
Chest port removed October 2009
11 years since diagnosis NED
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08-03-2007, 04:58 AM
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#10
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Deceased
Join Date: Mar 2006
Location: Virginia
Posts: 113
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Yay!!!!!
Kate,
I am so glad that you are more at ease, nothing worse than the waiting and worrying. You have been on my mind so much and in my prayers and I just know that everything is going to come back okay, it has to dagnabit!
Sending you lots of love and hugs and wishing you a wonderful weekend. Go pamper and spoil yourself this weekend, you deserve it Sweetie.
Love,
Nicola
__________________
March 18, 2004, Age 36
Diagnosed: High Grade DCIS, Microcalcifications, Solid and Comedo type, Nuclear grade 3 with 1mm margins, ER+, PR+, Stage "0"
3-8-04 Left breast lumpectomy.
4-1-04 thru 6-24-04 Adjuvant XRT.
11-29-05 Gallbladder attack.
12-01-05 Surgery to have gallbladder removed, discovered cancer spread throughout liver in both lobes, HER2+ amplified by FISH and interestingly enough negative for ER and PR.
12-9-05 Clinical trial consisting of Tykerb, Taxol and Herceptin along with Zometa once a month. On clinical trial for 15 months before liver mets started progressing. Started on Navelbine 3-9-07. Navelbine failed, switched to Gemzar July 07. MRI of the brain on July 7, 07. Results revealed multiple brain tumors. Taken off of Gemzar immediately and began 15 rounds of WBR which I completed on July 26, 07. CT scan on 7-26-07 significant progression in the liver mets. I am now getting ready to start on Xeloda along with Herceptin and Zometa once a month.
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08-03-2007, 05:06 AM
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#11
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Good Morning Kate!!!
Told you I was not going to even think about you having brain mets until it was confirmed!!! That means since I got the news my heart and head was totally encompassed in prayers & positive energy!! Thank goodness I did not waste my time thinking the worse!!
Good going my Warrior Angel you keep fighting those other fights, now you have the relief of having one less. What a great way to start my day. Again, let's keep the good news coming for everyone. Seems we are on a roll here this week!!
(I cannot wait until Monday, but this sounds promising)
Waiting For A Miracle...and commanding one NOW!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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08-03-2007, 06:21 AM
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#12
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Senior Member
Join Date: Jan 2007
Posts: 144
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Yeah!
Score 1 for the good guys! Will keep you in my prayers as always.
Emelie
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08-03-2007, 06:57 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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See - those blood vessels can show up funny - just like mine did.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-03-2007, 08:31 AM
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#14
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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Kate, So happy to hear your news. Enjoy your weekend even if you don't get that call today. Peace Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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08-03-2007, 01:03 PM
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#15
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Kate,
Such great news. Many are still praying for you. Good luck with the MRI tomorrow. Hoping you get the results quickly so you can finally relax.
Keep us informed.
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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08-03-2007, 03:47 PM
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#16
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Kate,
I am feeling a sense of relief. I know you haven't gotten the whole picture yet, but it is sounding promising that it isn't a brain met. I am praying that it isn't and am claiming that right now! I hope that you are doing well and look forward to more great news.
Hugs and Prayers,
Lexi
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08-03-2007, 09:10 PM
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#17
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hoping for the best results. Will tune in Monday. Bev
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08-04-2007, 05:12 AM
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#18
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Kate, I am happy to see this news. Hoping to read good results from the MRI. Keep fighting.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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08-04-2007, 05:59 AM
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#19
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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It's always great to hear your doctor being positive and giving you good news. Congratulations, I'm keeping you in my prayers.
Hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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08-04-2007, 07:32 AM
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#20
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Great news Kate! Can't wait for Monday's final report!
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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