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03-07-2012, 03:31 PM
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#21
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: I think I'll go to Portland...
Flori - Cabo sounds better to me too!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-07-2012, 03:47 PM
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#22
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: I think I'll go to Portland...
You can go to CABO after a short stint in Port-land!
Wow, I say go for what Sheila suggested, based on Rhondalea's photo. That looks smaller than my last "regular" Bard variety.
You really DO get used to them fairly quickly. My first port was placed a little low, and I could wear most of my tops without it sticking out. The second one was mandated to be higher and closer to middle as "no ports in breast tissue" any more. That one was a little more noticeable and, depending where I was going, I wore something with a high "chest" or neck line.
Flori is brave to use her hand. I have some "valves" in my veins there that always stop the access and leave me with a big bruise.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-08-2012, 06:40 AM
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#23
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: I think I'll go to Portland...
I'm confused ... are you saying that you were a virgin in 2004????
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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03-08-2012, 08:36 AM
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#24
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Senior Member
Join Date: Sep 2011
Location: Lovington, New Mexico
Posts: 100
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Re: I think I'll go to Portland...
My port is on my left bicep. No straps to worry about. It is low profile and barely noticeable even in sleeveless situations. I am very active, and it has never bothered me. I can barely feel it when accessed. I hated this thing on my arm at first, but I love it now. I had my expander implant exchange yesterday and the nurse had to stick it twice. Then it dripped too slow, and they had to put an IV into my arm. That was weird, and I hope that the port was not damaged or anything. Overall, what a great invention!!
__________________
7/25/2011 Diagnosed DCIS and IDC on left from biopsy.
8/9/2011 Bilateral mastectomy
7mm clear margins Stage 1b, grade 3, 0/4 SLN ER- PR+ Her-2/neu +
9/19/2011 Started TCH every 3 weeks, TC for six cycles, Herceptin for 1 year
May all of your dreams bloom like daisies in the sun....
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03-08-2012, 10:17 AM
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#25
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: I think I'll go to Portland...
Ha ha PinkGirl,
I said what I meant and I meant what I said. Since you are always trying to get me in trouble (remember the blue water bottle?) I worded it very carefully, just for you. 
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-08-2012, 11:47 AM
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#26
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Member
Join Date: Jun 2011
Posts: 22
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Re: I think I'll go to Portland...
I am in Portland both literally and figuratively. I love my port and haven't had a single problem with it. I call it my "plug and play" device. The only time I remember having it is when I get an infusion.
Also, it's beautiful in Portland, Oregon today. Sunny, blue skies and temps in the low 60s. A lovely, early taste of Spring.
Maryann
__________________
Found lump during a SBE
May 19, 2011 - Diagnosed IDC
June 9, 2011 - Lumpectomy, 2 tumors in left breast. One 1.3 cm and the second 1.5 cm, HER2+, er-/pr-, er+/pr-, stage 2a, type 3, 12/1+ lymph nodes.
June 22, 2011 - Drain out. Yay!
July 7, 2011 - Start chemo. 4x A/C, 12x weekly Taxol/Herceptin, Herceptin 1 year
June 28, 2011 - Port installed
July 14, 2011 - Ultrasound for mass on thyroid.
July 22, 2011 - Biopsy on thyroid mass. Results: inconclusive. Another biopsy scheduled in a couple of months.
September 8, 2011 - A/C chemo done. On to Taxol/Herceptin.
October 19, 2011 - 2nd biopsy of thyroid mass. Benign. Yipee!
December 16, 2011 - Final chemo!!!
January 11, 2012 - Started 33 rads
February 24, 2012 - Finished rads! Herceptin only now.
September 26, 2012 - Finished Herceptin.
www.CaringBridge.org/maryannschwab/visit
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