 |
|
08-15-2010, 10:22 AM
|
#81
|
|
Member
Join Date: May 2010
Location: Suburb of Baltimore, MD
Posts: 23
|
Re: Joe passed on this evening
I am really sorry to hear of your father's illness and passing. I hope you and your family can find comfort in knowing that your father touched so many lives with his work and made a difference in the world.
May God bless you and your family.
Love,
Carolyn
__________________
1/10 Diagnosed with IDC; 3.7 cm tumor
3/10 Left Radical Masectomy; 2 /16 nodes positive - Grade 3 ER+/PR-/HER2+++
4/10 BRCA1 and BRCA2 both negative
4/10 Pet Scan showed another node .07mm positive on the internal mammary area
4/10 ALLTO Trial - randomized for Arm 4 - Taxotere/Carboplatin and Herceptin only (no Tykerb) Began 6 cycles Taxotere/Carboplatin (every three weeks) and Herceptin weekly for eighteen weeks and then every three weeks until the end of April 2011
Radiation to begin 9/2010
|
|
|
|
08-15-2010, 12:57 PM
|
#82
|
|
Senior Member
Join Date: Sep 2007
Location: Near Chicago
Posts: 196
|
Re: Joe passed on this evening
I took two days off reading posts here and just found out. The loss of Joe (your father) leaves me breathless. Though I never met him in person, through his dedication and care, he is in a small group of men who have truly impacted my life for the positive. In my mind it did not occur we would lose him.
Blessings to your family in this hard time.
Melanie
__________________
Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
|
|
|
|
|
08-15-2010, 04:15 PM
|
#83
|
|
Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
|
Re: Joe passed on this evening
This news left me shocked and in tears. I met Joe and Christine in Denver last year and he was so vital. I am so so sorry. he was an inspiration.
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
|
|
|
|
|
08-15-2010, 06:50 PM
|
#84
|
|
Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
|
Re: Joe passed on this evening
Danielle -- thank you for sharing this news with us all. I know how hard it must of been to lose your dear Father. I pray that you and your family can find peace in his passing. He and Christine have done so much for breast cancer here at Her2. May God bless you and the family.
Cindy
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
|
|
|
|
|
08-15-2010, 07:20 PM
|
#85
|
|
Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
|
Re: Joe passed on this evening
Dear Christine, Deborah and Danielle,
I logged on tonight at the urging of a friend and I am stunned by this kick-in-the-gut news about your Joe. I thank this kind man for helping me climb out of the deep dark bucket of despair when I was first diagnosed with metastatic disease ... 6 years ago. I wish fervently I could have done something for him.
In the corner of my mind is a memory of the year I joined Joe and Christine at an ASCO conference. I was struck by the kind concern Joe had for Christine; asking doctors for their opinions, Joe was ever hopeful and optimistic...and clearly in that deep kind of love with Christine often yearned for but not so often achieved.
I loved hearing Christine's story when we had the good fortune of being warmly welcomed by both Joe and Christine at dinner, when I flew from Connecticut to Seattle for the vaccine trial. Who could ask for more hope than that?
Joe; you are in the loving arms of scores of Her2 angels; I have no doubt they are all tenderly escorting you on this labor and delivery into new life, with joy in their hearts.
Christine, Deborah and Danielle: such a wrenching loss for you; Joe who stood shoulder to shoulder with Christine; indeed with all of us; only to have him torn from your life. Is there condolence for you knowing how much he was loved by so many?
May God's love help you find peace as you mourn the loss of this man who clearly loved you all so very much.
Love Kim from CT
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
|
|
|
|
|
08-16-2010, 12:35 AM
|
#86
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
Re: Joe passed on this evening
Copying Danielle's message from her new thread: Information About Joe's Memorial and Our Family's Wishes so all will get an e-mail notification:
First off, I just wanted to thank all of you so much for your support and kindness. That's one of the best parts of this message board, and Dad would be so proud to see just how warm you've been to our family during such a sad time no matter what distance stands between all of us. The camaraderie this website and other support groups have achieved is so inspiring, and I know Dad was glad to be a part of that.
The visitation will be held on Tuesday, August 17th from 5 - 8 PM at Eternal Hills Mortuary in Oceanside. The memorial will be at 10 AM on Wednesday, August 18th. I was able to get our family priest to officiate for us, and I have to say, the place he'll be buried is so incredibly beautiful, right beside the historical Mission San Luis Rey overlooked by a statue of Our Lady of the Assumption and underneath a gorgeous 'fountain' of cascading roses. It's such a beautiful sanctuary, and I know he would have loved it too.
Also, I know a lot of people have been asking about flowers, gifts, etc., and after talking that over with my sister and my mother, Christine, we all decided it would be best to request donations to the organization instead.
You should be able to access a way to pay online through our Make a Donation link on the front page. However, if you'd like to send a donation or even just a card with a few words for our family, you can send it to our address:
6973 Mimosa Drive
Carlsbad, CA 92011
Thank you once again for all of your love. I'm hoping some of his more local HER2 'sisters' can attend one of the services this week. I know my mom would really love to see you.
As Daddy always signed, 'Love and light'.
-- Danielle
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 08-16-2010 at 12:38 AM..
|
|
|
|
|
08-16-2010, 06:24 AM
|
#87
|
|
Senior Member
Join Date: Sep 2006
Posts: 57
|
Re: Joe passed on this evening
I know we can't comfort you at this time. However over the next weeks and months please try to find comfort in knowing how deeply Joe touched our lives. I know I would not be here without this site. I only wish I had the proper words to express my gratitude. I will hold him in my prayers forever.
__________________
Missy W.
Diagnosed 1/06; Her-2, er/pr+
lumpectomy
4 Rounds A/C
tiny area of interest in liver - watching
12 rounds of Taxol w/ Herceptin
tiny area cleared - Stage IV (because area responded to chemo)
Herceptin weekly
27 rounds radiation
NED 8/06
10/06 oopherectomy
Arimidex
1/07-7/07 Vaccine Trial - UW Seattle
3/09 liver met back
3/09 Navelbine, Herceptin Aromasin
6/09 Liver Resection
|
|
|
|
|
08-16-2010, 08:08 AM
|
#88
|
|
Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
|
Re: Joe passed on this evening
I am so shocked and sad. Joe was a pillar of strength for all of us. I had no idea he was fighting his own battle. I cannot thank him and Christine enough for the life line they provided me here. May god rest his soul his peace. My sincere prayers for Christine and all his family.
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
|
|
|
|
|
08-16-2010, 10:17 AM
|
#89
|
|
Member
Join Date: Jul 2008
Posts: 9
|
Re: Joe passed on this evening
Danielle,
I am so sad for you and your family. Joe was so helpful to me at a time when I had lots of questions and no answers. He made this website the most gentle loving breast cancer support site I have found.
Rosemary
|
|
|
|
|
08-16-2010, 11:11 AM
|
#90
|
|
Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
|
Re: Joe passed on this evening
what stunning and sad news. i can say about joe that was an angel before he became an angel. he will be deeply missed - my heartfelt condolences to you all. valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
|
|
|
|
|
08-16-2010, 11:45 PM
|
#91
|
|
Senior Member
Join Date: Apr 2007
Location: LA LA Land
Posts: 1,607
|
Re: Joe passed on this evening
My heart is pounding - I like others - had no idea Joe was not well. I am sorry and saddened by this news. My deepest sympathy to Christine, Deborah and Danielle, their family and friends, including all who loved him on our board. sadFlori
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.
3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
|
|
|
|
|
08-17-2010, 08:52 AM
|
#92
|
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
Re: Joe passed on this evening
sorry this is late in coming but sending hugs and prayers to you and your family. when i found this sight i wish i'd found it sooner to helped me get thru some rough treatments. as it was it helped when i got to the easier stuff.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
|
|
08-17-2010, 09:51 AM
|
#93
|
|
Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
|
Re: Joe passed on this evening
So shocked. I read it yesterday, and came back today to make sure it wasn't a dream. I feel like I lost my Father all over again.
Although I've never met Joe or Christine, I'm here to tell you what a difference they made in my life and in my treatment. I hate to think what it would have been like had I not had this website to go to for advice, venting and comfort. Joe made that possible.
My deepest sympathies to you, Christine, and your children and all of your family.
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
|
|
|
|
|
08-17-2010, 11:36 AM
|
#94
|
|
Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
|
Re: Joe passed on this evening
Danielle, I am so sorry to hear about the news to your father. Please know you and your entire family are in my thoughts in prayers.
I was diagnosed young and your dad had always given me encouragment and support throughout this journey. I am thankful to him and your mom for all of their work in giving the HER2 community a voice. He was truly and angel.
|
|
|
|
|
08-17-2010, 11:39 AM
|
#95
|
|
Senior Member
Join Date: Dec 2006
Posts: 415
|
Re: Joe passed on this evening
I'm so stunned and sad. I've been away from the Board for a week and when I logged on yesterday, I could hardly believe what I was reading. It's taken me another day to find the words...
I was only 33 years old when I was diagnosed 8 years ago, Stage IV with this disease. I was lost and very scared and this community- created and nurtured by Joe, inspired by Christine- took me into their arms and every day since have offered me guidance, courage, hope, knowledge and an endless supply of comfort and friendship. What gift.
Where would any of us be without each other, under Joe's watchful eye?
To Christine, Danielle, your family and family of friends, may you find peace in knowing how much Joe and you have all impacted my and all of our lives and the legacy you've created will live on with each of us continuing to offer guidance, courage, hope and knowledge to one another and the new members who will come to walk this path.
God bless~
Jessica
|
|
|
|
|
08-17-2010, 01:18 PM
|
#96
|
|
Senior Member
Join Date: Jan 2008
Posts: 154
|
Re: Joe passed on this evening
This is one of the reasons that I don't visit the site as often as I should. It seems like every time I log in we have lost another warrior to this horrible cancer.
I am so very saddened and shocked to hear this, as I, like the rest had no idea Joe was fighting it as well.
When I was first diagnosed and found this website, I made one post and asked if it was ok and/or proper for a male to be posting here. Joe was the first one that responded to me, welcomed me, and made me feel very comfortable in discussing my situation so I could learn as much as possible about Her2.
Other than that, I'm really at a loss for words and can only add my condolences as the rest here have. My heart goes out to you and your family. He truly was a great man for what he did for all of us here. He was also remarkable with his endeavors while fighting his own battle while keeping it secret from us.
I have such huge tears and a large lump in my throat.....this is such a shame.
God bless Joe and his family.
Doug
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
|
|
|
|
|
08-17-2010, 02:06 PM
|
#97
|
|
Senior Member
Join Date: Jun 2007
Location: Bergenfield, NJ
Posts: 121
|
Re: Joe passed on this evening
I'm so shocked and upset to read this. Joe was an amazing man and brought lots of hope to all of us. He will be forever in my heart.
With deepest sympathy,
Gemma
__________________
My love to you all
Gemma
____________________________________
Dx July03 at 35
Rt,breast lump.,1 node+
ER+(98%)ER-, grade3
A/C 4rounds,Rad for 38 days
Tamoxifen 2004-05
Recurrence Feb.2006, radi double mastectomy canceled bec. of mets, StageIV lungs mets
Her2+++, BRCA negative
Taxol/Herceptin six rounds of Taxol from April06.then Herceptin alone til May07. Started Tykerb/Xeloda in Jun07-Sept.07 bec of progression of the lympnodes. Navalbine/Herceptin Sept.07 to April 08 due to progression . Gemzar/Hercptin Apr08.June08 Brain MRI showed Brain Mets.CraniectomyAug.1,08, tumor removed completely
completed 20 wbrt!
Started Doxil 10/31/08 (monthly) and weekly Herceptin
Ixempra on 2/13/09
due to multiple hepatic mets
will have Herceptin as well.
Radical rt.breast Mastectomy June2009.
Ixempra/Herceptin 11/06/09--increasing right axillary lymphanenopathy and enlarging left upper lobe nodule :-(
Taxotere/Herceptin 3/5/10,more liver mets, lungs, lymphnodes. 2 weeks on, one week off...
|
|
|
|
|
08-17-2010, 02:34 PM
|
#98
|
|
Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
|
Re: Joe passed on this evening
Christine, Deborah, and Danielle,
I am heartbroken for you all. Your father, whom I never had the pleasure to meet in person, was such a wonderful source of inspiration, hope, compassion, and knowledge. He gave so much of himself to those of us on this site. I will never forget how he reached out to me when I first found this site and started posting. His love for you girls was plainly obvious in all he did and all he wrote. I am holding you all in my heart as you grieve for this incredible loss.
Joe, you were one of a kind and you truly made a difference in the lives of so many. I am grateful for having known you - if only on line. May you rest in peace, dear Angel.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
|
|
|
|
|
08-17-2010, 06:37 PM
|
#99
|
|
Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
|
Re: Joe passed on this evening
Dear Christine, Danielle and Deborah,
I can't find a word to describe my sadness. I met Joe and Christine in 2005 in San Diego. I can never forget his kind and caring face.
Love and hug to you all.
|
|
|
|
|
08-17-2010, 07:06 PM
|
#100
|
|
Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
|
Re: Joe passed on this evening
Christine, Danielle and the rest of Joe's family,
My thoughts are with you.
I want to echo the appreciation for the work that Joe did to help us in the Her2 community. It was such a comfort that in a time of crisis I had the Her2 board to go to for help and support.
I am so sorry that you have lost such a wonderful husband and father.
'lizbeth
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 07:14 AM.
|
Linear Mode
