HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 07-19-2008, 12:31 AM   #1
KymAustralia
Member
 
KymAustralia's Avatar
 
Join Date: Oct 2006
Posts: 23
Hello again to everyone from a fellow survivor

Hello Joe, Christine and everyone else !!! Been a while and I am shattered and devestated to read we have now lost our dearest Lolly. I am such a coward I think thats why I am afraid to check on this site for long periods because it breaks my heart to hear that yet another angel who inspired me so much with her caring and courage has passed.
I am praying for all Lolly's friends and family .........God Bless you all and dearest Lolly who is now at God's side with Lyn, Mary and others I grew to love through this site. I will miss her so much.

I am still doing well thanks to all you pioneers and you are in my thoughts always.

Congratulations Joe on your retirement. (((((((((((((Hugs)))))))) to dear Christine whom I hope is doing well

Much love

Kymxxxx
__________________
Dx Nov 2002 Her2 +++ Er+ 44 years of age (Pre menopausal)
Lumpectomy 1st Dec '02
Stage II 2cm tumor.. Clean margins
Her2 +++ Er pos
1 x Pos Node of 14
Entered BCIRG 006 Trial Jan '03
4 x AC 4 x Taxotere 30 Rads
1 year Herceptin
5 years Arimadex
Total hysterectomy (came out of chemopause) March '04
2012 - Still NED
KymAustralia is offline   Reply With Quote
Old 07-19-2008, 12:34 AM   #2
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Great to hear from you, Kym.

LOOKING GOOD! Keep up the good work, and remember that loss is part of life, hard as that may be. We want to keep our dear friends close to us.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 07-19-2008, 05:01 AM   #3
KymAustralia
Member
 
KymAustralia's Avatar
 
Join Date: Oct 2006
Posts: 23
Hi Steph,

You're so very right, and I always feel there is so much courage shown on this site thats its very humbling.

Breast cancer is a tough battle.. theres NO doubt of that and its incredibly sad to see some of those who fought this beast so bravely finally succumbing.

I was one of the lucky ones because I was able to get herceptin on trial as a firstline treatment and I am incredibly grateful. In all honesty at this time I have never felt better in my life.

Breast cancer was not all doom and gloom ........ in fact in my case it served as a wake up call and it did have a very positive influence on my life.

Lots of good things occured because of my breast cancer experience. Without this disease I never would have ventured here and met some of the wonderful ladies I did 5 1/2 years ago. Women I will never forget, who touched me with their humor, courage and sharing.

Cancer also forced me to rethink my lifestyle and I completely turned my life around... became fit.. lost a lot of weight and began to appreciate life and live it to the fullest again.... all due to this brush with death.

I return here to pay tribute to those wonderful brave women who paved the way for those like me and in return I hope to give hope and inspiration to those who are newly diagnosed because I know what a terrifying experience it can be.

There IS light at the end of the tunnel.
__________________
Dx Nov 2002 Her2 +++ Er+ 44 years of age (Pre menopausal)
Lumpectomy 1st Dec '02
Stage II 2cm tumor.. Clean margins
Her2 +++ Er pos
1 x Pos Node of 14
Entered BCIRG 006 Trial Jan '03
4 x AC 4 x Taxotere 30 Rads
1 year Herceptin
5 years Arimadex
Total hysterectomy (came out of chemopause) March '04
2012 - Still NED
KymAustralia is offline   Reply With Quote
Old 07-19-2008, 05:31 AM   #4
Mary Jo
Senior Member
 
Mary Jo's Avatar
 
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Hi Kym,

I've never "met" you but enjoyed reading your post. Cancer can change our lives for the better - no doubt - and learning to live within our "new normal" can be challenging at times but I believe we become better people on account of that "challenge."

I'm so happy for you that you are doing so well and so much good has come from a so called "bad" situation for you.

God's continued blessings of healing I pray for you.

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
Mary Jo is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:55 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter