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Old 08-16-2012, 08:25 AM   #1
Alyce
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Join Date: Mar 2008
Location: Illinois
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femara side effects

I am on my 4th year of Femara. Everything is going pretty well EXCEPT I now have Cholesterol (245!) and never had a problem before. We eat a 99% healthy diet, I even wrote a cookbook about changing to a healthy diet. Lo and behold I have now gained about 20 pounds which is another side effect! My husband could not believe I could gain on our diet of mostly veggies, some fruit, a little bison and chicken, hardly any carbs. Anyone out there taking any kind of diet concotions to lose some of the weight? I'm always afraid to add supplements but would love some advice if you have had the same experience. My primary Doc does not want me to start statins which is fine with me.
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Old 08-19-2012, 08:05 AM   #2
chekmark
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Location: Doylestown, ohio
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Re: femara side effects

I have been on femara for a year and half now. I have never had a weight problem and I also have gained about 15lbs. My oncologist said it was from the femara most likely. I find that my ankles and wrist tend to swell at times and just feel puffy. My rings are tight. I have never really had to watch my diet but I have found that I do now and cannot really get rid of the weight. I lost a few pounds but nothing noticeable. I walk and stay extremely active. I take vitamins and drink a ton of water, veggies, fruit just like you and it is just frustrating. My cholesterol was ok, my ldl just slightly elevated so was just asked to have it rechecked in 3 or 4 months which is next month so I will see. My hdl was fine. If there is a solution I would also like to hear about it. Good luck to you. Darlene
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DX Sept 30 2010 at the age of 49. Oh crap! 1.5 cm idc, stage 1 grade 3 er/pr+, her2+ no lymph nodes, mastectomy Oct/10. Started 6 rounds of TCH Dec/10 and will continue herceptin until Nov /11 and just started femara.
Stray kitten found my lump while I was playing with it. It is now my pet and my dog is not real happy about that.
Mammo good
last herceptin 11/21/11 YAY
reconstruction 12/09/11
Chapter closed 12/10/11, hopefully, fingers crossed
Bone scan, chest xray, clear
04/27/12 Expander removed, implant put in, ahh sigh of relief, much more comfortable
Sept 30, 2014, 4 years NED
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Old 08-19-2012, 01:59 PM   #3
Pray
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Location: Michigan
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Re: femara side effects

It may not work for everyone. My urologist only has me drinking 5 or six glasses of water a day. (which includes all fluids for that day). Unless you have some other health issues we just dont have to have alot.When we are on arimidex and other ais not only do we gain weight we also tend to carry extra fluids. This has worked well for me. I still have some swelling but not a weight problem. As with everyting we try new, always check with your dr. first! This is my case I don't assume to make it out to be anyone elses.
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 08-19-2012, 02:44 PM   #4
Alyce
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Join Date: Mar 2008
Location: Illinois
Posts: 25
Re: femara side effects

Thanks for the info. it is really frustrating to not be able to lose some weight. I have gone up 2 dress sizes! We walk or I do a treadmill every day. I thought about trying "Sensa" but I wonder if any diet supplement would even make a difference because I really don't eat a lot of food.
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Old 08-19-2012, 03:29 PM   #5
KristinSchwick
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Re: femara side effects

Not to offend anyone, because weight is a big deal to me too. But its funny because my oncologist and nurse are excited when I gain weight. Threw me off at first because I was like "what" but then realized that chemo often 0really makes you so sick that weight loss is alot bigger issue. Just thought I'd share.
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[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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