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Old 06-28-2010, 07:30 PM   #1
Faith in Him
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Confused by Onc.

My onc wants me to start Xeloda again. I have no signs of the IBC rash, no symptoms, and my last scan was clear. Isn't it standard to drop the chemo and keep me on Tykerb? I will have a scan soon but even if that is clear; he wants me on chemo.

His reasoning is that I'm young and why change anything that is working? I have been off Xeloda since surgery a few months ago.

Any thoughts?

Thanks, Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 07-02-2010, 09:19 AM   #2
Ellie F
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Re: Confused by Onc.

Hi Tonya
Is he taking a belt and braces approach? After finishinf taxotere my onc said he was considering whether I should have herc and xeloda long term also. he said it was a difficult call as the research was unclear and you had to consider quality of life.I understand the thought of going back on chemo especially when you are NED is so hard.

Ellie
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Old 07-02-2010, 03:06 PM   #3
Midwest Alice
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Re: Confused by Onc.

Hi Tonia,
Its working and that is wonderful. Maybe you could take it for a little while longer to protect that ned.
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04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

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Old 07-02-2010, 08:05 PM   #4
Rich66
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Re: Confused by Onc.

Was the xeloda tolerable to you? Surgery can release cells into the system, depress the immune system or trigger undesirable responses. Might not be a bad insurance policy. A middle ground might be metronomic (low dose, fewer breaks) Xeloda.
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