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02-28-2010, 08:49 PM
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#1
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Member
Join Date: Feb 2010
Location: new jersey
Posts: 7
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womanofsteel aka Jacquie
Hi my name is jen and my partner Jacquie has been on this site for quite a while. She is currently in the hospital again, as this is her 3rd time and they finally figured out that her bile ducts are clogged.So the first idea was to stent them, that didnt work. Now they have gone in through her side and placed a drain in her liver. I just have been having a rough time with her being in the hospital, and I wanted to come on and update everyone. She is the love of my life and I have never seen her feeling this bad. Im so scared of losing her, I cant stop crying, she is strong but is getting discouraged. she just started chemo again,as they are trying to shrink the tumor in her liver.
she is currently on tykerb/xeloda
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02-28-2010, 10:16 PM
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#2
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: womanofsteel aka Jacquie
Hi Jen,
I'm so sorry Jacquie is not doing well. Thank you for letting us know. I've read her posts and she is a Woman of Steel, so don't give up on her.
My thoughts and healing prayers are with you both.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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02-28-2010, 10:25 PM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 290
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Re: womanofsteel aka Jacquie
Hey Jen,
I haven't been on regularly over the last several years so I am not readily familiar with Jacquie's disease and treatment course. I just wanted to mention, as many do when liver mets are present, to ask the oncologist about the possibility of radio frequency ablation or cryo ablation, if the tumor is isolated. Just a thought. You hang in there for her and yourself.
Sincerely,
Tom
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03-01-2010, 05:17 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: womanofsteel aka Jacquie
Jen - Thank you for letting us know about Jacquie, but I am sorry to hear about her struggles right now. Xeloda/Tykerb is a good treatment combo - hopefully it will do it's job on those liver mets. Give WOS all my best for feeling better soon on this new treatment and resolution to the blocked ducts. My best to you too, Jen. She's lucky to have you be her side.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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03-01-2010, 05:31 AM
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#5
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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Re: womanofsteel aka Jacquie
Jen,
I picked up on Tom's comment about RFA/cryoablation. I had cryoablation on a single liver met. I had the procedure a year ago and so far I am holding NED status (no evidence of disease).
Unfortunately, there are limitations with the procedure in terms of # of mets and location, but it is something worth checking into.
Please ask your Dr. about the possibility.
I am so glad you found us and appreciate your efforts to keep us posted.
Love, Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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03-01-2010, 06:35 AM
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#6
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Member
Join Date: Feb 2010
Location: new jersey
Posts: 7
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Re: womanofsteel aka Jacquie
thanks everyone, i will def ask the dr about your suggestions, and well wishes, at this point her liver is very diseased, so they are doing what they can
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03-01-2010, 07:31 AM
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#7
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: womanofsteel aka Jacquie
So sorry to hear this. Please give WOS my best. I'll keep all my
fingers and toes crossed for her.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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03-01-2010, 08:15 AM
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#8
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: womanofsteel aka Jacquie
Please, tell the WomanofSteel she is in my thoughts and prayers. Hope she is feeling better today.
Amelia
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03-01-2010, 08:20 AM
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#9
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: womanofsteel aka Jacquie
Saying a prayer for healing and encouragment. Please tell Jacquie that we are thinking of her.
Take care of yourself, too. I know this is very tough on you.
Hugs and Prayers,
Lexi
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03-01-2010, 09:10 AM
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#10
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: womanofsteel aka Jacquie
I am keeping her in my thoughts and prayers. I know she will get through this (as you will too). I know its not easy being the caregiver, but you can do it!
She is amazing and a fighter. Keep us posted.
Sarah
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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03-01-2010, 09:49 AM
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#11
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: womanofsteel aka Jacquie
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03-01-2010, 10:12 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Re: womanofsteel aka Jacquie
As always prayers to you and your sweetie...take care of yourself too  Huggles.
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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03-01-2010, 10:16 AM
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#13
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: womanofsteel aka Jacquie
I have my fingers crossed for her. The main thing is don't give up. Keep searching for answers and treatments for the problems. Getting a second opinion might help. It is humanly impossible for one doctor to know everything. Stay strong. We are thinking of you both.
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03-01-2010, 10:32 AM
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#14
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: womanofsteel aka Jacquie
Jen, I want to send my love and prayers to both you and Jacquie. Nothing is more stressful than seeing someone we love so much in pain and distress. I'm awfully glad she has you by her side as she begins yet another battle. Please let her know that we join her battle with love and concern and prayers. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-01-2010, 11:10 AM
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#15
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: womanofsteel aka Jacquie
Jen,
Thanks for the update, we do worry. Please let Jacquie know that I am thinking of her, and holding you both in warm thoughts. I can only think of her as Woman of Steel.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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03-01-2010, 03:04 PM
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#16
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Member
Join Date: Mar 2007
Location: Indpls, IN
Posts: 12
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Re: womanofsteel aka Jacquie
Jen, I had the same thing in 2006 complete with drain and bag. I was jaundiced, itching and very sick. The combination of 2 stents and the biliary drain finally brought my bilirubin down to a level that would allow me to get some chemo. The chemo worked and the tumors in my liver and around my bile ducts shrank. I got the drain out and my gallbladder out 4 months later.
I know its scarey, but there is hope.
Jean
__________________
Jean B
Inflammatory Breast Cancer 2003
A/C Taxol dose dense regimen
6 weeks radiation
1 year Herceptin
NED for 2 years and 4 months
Recurrence in July 2006 with extensive liver mets over 70%, tumor obstructing bile duct-gallbladder, mets to spine and pelvis, abdominal lymph nodes enlarged, mass on pancreas.
Hospice called in until Gemzar and Herceptin started in Aug. 2006
May 2007 pet scan shows only 1 liver lesion 1.1 cm. bone mets gone, no enlarged lymph nodes.
June 2007-Switch to Tykerb/Xeloda because markers increased
Sept 2007-tumor marker 357-2.4 cm mass on pancreas,1 cm lesion on thyroid, duodenum and more liver mets.--switch to abraxane/carboplatin/herceptin and doing much better
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03-01-2010, 03:46 PM
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#17
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: womanofsteel aka Jacquie
Dear Jen -
Thanks for your post - difficult as it was.
Did not know that WOS was in the hospital for this before. Sorry it took her docs so long to see that it was her bile ducts clogging.
Praying that the drain will work well enough for Jacquie to feel well enough for her treatments. Having such a great family I know will help her.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
Last edited by StephN; 03-01-2010 at 06:40 PM..
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03-01-2010, 04:04 PM
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#18
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: womanofsteel aka Jacquie
Jen,
Sorry to hear about Jacquie's battle with her liver. Please tell her that I'm sending prayers and good vibes her way.
I would echo Tom and Lori about checking into RFA or cryoablation (freezing the tumor).
On that note, what many advanced breast cancer patients do not realize is that these procedures are really looked down upon by most medical oncologists and also surgeons, and therefore they're never mentioned to the patient. Oncologists do not consider them standard of care for advanced breast cancer.
As Tom mentioned, I don't know the particulars of Jacquie's case, but perhaps she can find out whether RFA or cryoablation might be an option. If her oncologist disagrees, I would consult with an interventional radiology doc to find out whether it's even a possibility.
I had a lung RFA. But unfortunately by a year later a fungal ball developed because I had inhaled a common soil fungus while gardening. This was a rare occurrence which lead to a lung surgery to cut out that section of the lung. But, the good news is that the pathology report showed ONLY the fungus -- NO CANCER -- so after a year I was still NED.
Hang in there.
Best, Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
Last edited by Joan M; 03-01-2010 at 04:16 PM..
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03-01-2010, 09:16 PM
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#19
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: womanofsteel aka Jacquie
Jen,
Please pass my best wishes to WOS (Jacquie). I am praying that she will overcome this setback.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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03-01-2010, 09:49 PM
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#20
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: womanofsteel aka Jacquie
Hi Jen,
I am sorry to hear that WOS is in the hospital.
Please let her know I am saying prayers that the dr.
clears up the liver ducts...and her new treatment will
do the rest.
Jen take care of yourself so that when WOS comes home you will be in good shape to give her your best care.
Sending you and WOS a huge hug
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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