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Old 10-31-2009, 12:38 PM   #1
bejuce
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Question PARP trials in Poland (or other European countries)?

A friend of a friend has been diagnosed with triple negative breast cancer in Poland. She's desperately searching for trials/drug treatments, in particular any PARP trials. My friend here who visited her in Poland last week told me that the care she's receiving is not at all ideal.

This may be a long shot, but if anyone of you know how to find out about clinical trials in Poland for triple negative breast cancers (or even elsewhere in Europe, she may be willing to travel), please let me know.

Many thanks!!! And enjoy your Halloween!
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 10-31-2009, 06:35 PM   #2
tricia keegan
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Re: PARP trials in Poland (or other European countries)?

I haven't looked at Poland yet but did find this link for the Uk http://scienceblog.cancerresearchuk....rp-inhibitors/

I live in Ireland, and there may be a trial here also but will get back to you if I find more info.
I'd also suggest she e mail Astrazeneca as they are funding most of these trials and should have the info she needs.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!

Last edited by tricia keegan; 10-31-2009 at 06:37 PM..
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Old 11-01-2009, 04:15 PM   #3
Christine MH-UK
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Re: PARP trials in Poland (or other European countries)?

Try

http://clinicaltrials.gov/ct2/show/NCT00516724

This trial is in the Netherlands and the United Kingdom.
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Old 11-10-2009, 10:07 PM   #4
bejuce
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Re: PARP trials in Poland (or other European countries)?

Thank you all for the info! I passed it along to my friend.
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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