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Old 11-03-2009, 02:13 PM   #1
Cal-Gal
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Location: Los Angeles, CA
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Wine and Herceptin

Hello Ladies and Gentlemen-

I was looking for information on drinking an occasional glass of (red)wine-organic of course or champagne while on Herceptin and could not find anything as far as if it is recommended or not???

Part of me doesn't even want to look at a glass of wine--knowing that the strong chemo I was on probably did enough internal organ damage--and why make it worse with alcohol--

And of course the other part of me--would like an occasional glass--

Anyone out there that can answer this???

Thanks in advance---
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 11-03-2009, 02:32 PM   #2
fullofbeans
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Re: Wine and Herceptin

Go ahead I should think the occasional glass or two of wine is good for the soul..

I think the secret is to no have it as a routine (i.e. on a daily basis or even quite often weekly..) but when you meet friends/family at the week end I think it would be bad to feel excluded..

and have toast to health!
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 11-03-2009, 02:38 PM   #3
Cal-Gal
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Posts: 309
Re: Wine and Herceptin

Hello and thanks for the note---

Yes, I was speaking of an occasional glass--like once a month!!!

Do you know of anywhere that there are any precautions posted by Genetech or others on this?

Thanks so much---
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 11-03-2009, 03:08 PM   #4
fullofbeans
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Posts: 617
Re: Wine and Herceptin

Never heard specifics about the occasional glass and herceptin.. I think we would have known by now.

I had a few glasses with others on this site.. all taking herceptin
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 11-03-2009, 04:17 PM   #5
tricia keegan
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Re: Wine and Herceptin

I'd go for it!

I'm off herceptin a long time but my onc told me during chemo it was okay to have a couple of glasses of wine the second week after chemo if I felt like it.
I did'nt go out much during this time so we arranged the second week after my chemo to plan a nice meal with wine at home and it gave me something to look forward to

I should point out I could hardly face eating the rest of the time so really looked forward to this and it was the highlight of my time in chemo for me and my "little reward!!
I don't have statisitics but don't feel it did 'nt do me too harm , all in moderation
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!

Last edited by tricia keegan; 11-03-2009 at 05:21 PM..
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Old 11-03-2009, 04:52 PM   #6
vlcarr
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Re: Wine and Herceptin

I specifically asked my onc this question when I was doing Herceptin/Tykerb and she said it would be fine. I haven't had any since starting chemo and didn't have much before...like you all said, in moderation. I have been thinking about a glass since I started feeling better........
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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Old 11-04-2009, 07:48 AM   #7
margiermc
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Re: Wine and Herceptin

I was told by dr. that once in a while ok with dinner - something to eat, pref. red wine - its better for you. I had one on my plane ride coming home from Seattle to Tampa. The next day I had blood work, my liver enzyme went up to 37, normal for me is 15. I never had a glass after that. The dr. thinks it was the plane ride, not the glass of wine. We had terrible turbulence - the wine helped with my nerves - but, I did not eat, so maybe that was not good.

But, I still like this call a nurse - they may help with herceptin and a glass wine at 1866-449-4372. However, chemo., no I personally would stay away from it - that is just me - its all up to you dr. and what your meds are and body reaction - we are all different.

dcis 8/08
liver met/10 or more
tch 3 mon. 2/11/09
herc - 3x
vaccine 6-11/09
tumor markers normal
blood work normal
scans normal
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Old 11-04-2009, 08:32 AM   #8
Hopeful
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Re: Wine and Herceptin

When I was receiving Herceptin, I would occasionally go directly from the infusion to a dinner where I had wine. Never had a problem.

Hopeful
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Old 11-04-2009, 05:08 PM   #9
Cal-Gal
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Posts: 309
Re: Wine and Herceptin

Thanks for all the feedback--

Margie--which blood work checks liver enzymes? what is the test or market called?
I get a panel once a month and weekly I get a CBC and electrolyte test---I would like to check mine--

Thanks--
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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