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Events and Social Calendar Post events which will be of interest to our members no matter how large or small. You may also add them to our calendar as an additional reminder.

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Old 06-08-2007, 04:20 PM   #1
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
To everyone who wish to attend.

I'd like to follow-up with our summer (first week in August, I'm thinking about August 4th) reunion in Southern California.

I would love to meet you guys.

I did receive a good response from.. let's see.. Esther, Andi, Chrisy, (forgive me the ones I do not remember) when I initially posted, this time I need the following:

I need the names of the ladies who want to come up to Carlsbad for the day.

My husband and I are timeshare owners at the Carlsbad Inn- we have "day time" use privileges and for those who may want to spend the night, I may be able to book a room for a fraction of the actual cost.

I need as soon as possible the names so I can make arrangements and set up a time and date for the reunion.

I do not need money at this point, however I do need a # so that I can begin planning. We have time but I would like to take care of it as soon as possible.

During the day time, we can go for a walk on the beach, which is only a few steps behind the Inn. There are bikes, surfboards, etc. for rent.There is also a swimming pool and a jacuzzi. Sounds fun!!! UH? For lunch or dinner we can go to "Fidel's" (rt next to the resort) or any other place. I do not want to impose. I just know this place like the palm of my hand, and the food is delicious. This is a wonderful place. You guys will love it.

I do not live in Carlsbad, our Founder Christine does. I live in Poway; about 45 minutes drive. I'm willing to take responsibility for this to happen, all am asking is the commitment from you ladies.

Please respond.

Go to www.carlsbadinn.com For more information.
Carlsbad Inn
3075 Carlsbad Blvd.
Carlsbad, Ca 92008
760-434-7020

P.S. I will be off next week as I have to attend a family reunion in Incline Village. I will return on the 20th of June. I will be checking this site while on vacation.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 06-08-2007, 04:38 PM   #2
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Fidel's - YUM!!!!

I lived in San Diego for about 5years, within walking distance of the original location in Solana Beach, then in Carlsbad. I'd love to come down - my bro in law may be visiting that weekend but i could probably come down for the day.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 06-08-2007, 08:30 PM   #3
Beckie
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Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
Count me in! That's not much of a drive for me and I would be free at that time. Sounds like fun!

Beckie

__________________
Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today


I know Who holds the future, and I know He holds my hand.
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