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Posts DIEP Reconstructive questions
Hi All,
I wanted to see if I can get some feedback from people who have had the DIEP Reconstructive surgery. I am about 12wks out from my surgery and in the last few weeks I began having burning/stabbing pains in my left breast (the one that started this mess that is.) The pain comes and goes and is in different areas but mostly in one or two different areas. Sometimes they take my breath away and other times its just plain annoying. This breast also feels very different from the right one. Its quite a bit more firm and I have absolutely no sensation. Where as the right side is much softer and although I don't have a lot of sensation I do have some. The firmness has really made me nervous as it just feels very different and of course everything runs through my mind of what it could be. Its not hard just firm. I did talk to my Onc and she sent me for an ultrasound to be sure. The ultrasound showed a few oil cysts and possible fatty necrosis all benign findings is what the results said. But for some reason it just hasn't eased my mind. I have an appointment to see my PS but that is not for another few weeks as he didn't have any openings and didn't feel there was anything urgent he needed to address. Any how, has anyone had these strange feelings in there breast after surgery? What does Fatty Necrosis feel like? Why does my left breast feel so very different from my right? I am so grateful that my Onc sent me for the Ultrasound but I just can't shake this feeling which I guess just comes this the territory of cancer. Would they be able to see everything including thickness or cancer if it was there in the ultrasound?
As always so many questions and any advice is greatly appreciated.
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Lovemyboy3
6/27/2013 - Diagnostic Mammogram due to a tiny lesion found.
6/27/13 - Diagnosed with Breast Cancer at age 33 :'(
07/11/2013 - Surgical needle biopsy
07/15/2013 - Path report results from biopsy - DCIS with micro invasion, Pagents disease - ER/PR- Her2+++
7/26/13 - PET Scan CLEAR!!
8/19/13 - B/L Mastectomy w/DIEP Flap reconstructive surgery. Nodes removed clear!! Stage 1A. Positive Margins remaining
8/23/13 - Finally HOME from the hospital
9/10/13 - All drains out. YEAH!!
9/6/13 - 2nd Surgery to try and remove remaining positive margins. Port placed.
9/11/13 - Path report shows all tissue samples are neg. Clear Margins!!
10/3/13 First TCH treatment - Horrible amount of side effects.
11/10/11 - First weekly Herceptin treatment.
10/11/13 - Late night ER visit due to Neutropenic fever - WBC at 0 in the hospital.
11/17/13 - Ultrasound on left breast due to pain. Benign findings: Oil cysts and possible Fat Neurosis from reconstructive surgery.
11/24/13 - Round 2 TCH treatment.
11/25/13 - Neulasta Shot given. Side effects minimal. Woo Hoo!
11/27/13 - Said goodbye to my hair. :-(
01/14 - Mammogram and Ultra sound - CLEAR!
01/23/14 - Last scheduled Chemo! WOO HOO!
03/04/14 - Phase 2&3 reconstructive surgery DONE!
03/06/14 - 2 days after surgery and 1st Herceptin only treatment. Minimal side affects.
03/14 - Began having pain and weakness in my feet and legs. Doc thinks it is delayed side affects of chemo possibly Neuropathy. Could even be the Herceptin (what ever it is I would appreciate it if it went away :/)
03/14 - A little over 8 wks post chemo and hair is about 1/2in long. :) Not a whole lot but its getting there. Eyebrows are taking there time but are coming in nicely.
04/14 - Where did my eyelashes go? :/
16 Rejoice always, 17 pray continually, 18 give thanks in all circumstances; for this is God’s will for you in Christ Jesus.
1 Thessalonians 5:16-18
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