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5 years and counting.

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03-11-2010, 12:06 PM	#21
TriciaK Senior Member Join Date: Sep 2005 Location: St. George, UT Posts: 582	Re: 5 years and counting. Congratulations, Marlys! I will always remember your visiting me in Arizona about 5 or so years ago! You are a special lady! Hoping for many many more years NED! Hugs, Tricia

03-11-2010, 03:59 PM	#22
curryalso Member Join Date: Sep 2009 Posts: 23	Re: 5 years and counting. Congratulations, you give me hope.

03-12-2010, 08:05 AM	#23
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267 Images: 4	Re: 5 years and counting. Yea Marlys! __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!

03-12-2010, 11:27 AM	#24
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Re: 5 years and counting. Marlys, Congratulations! A major milestone! Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!

03-12-2010, 04:39 PM	#25
Patb Senior Member Join Date: Oct 2006 Location: Louisville KY Naples FL Posts: 665 Images: 2	Re: 5 years and counting. Congratulations and wishing you many more years. Time to celebrate. patb __________________ patb Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov. 07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI. CT scan of Lungs every six months due to two small places. December 2009, bone scan due to bone pain. Follow up test in 2010.

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