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Old 09-09-2011, 11:04 AM   #1
Estelle
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Join Date: Nov 2009
Posts: 72
Walking the Susan B 3-Day

Dear Friends,

I have posted here from time to time so wanted to let you know that I am walking the Susan B. Komen 3-Day (60 miles) in 2 weeks in DC, and to ask for your support if you are inclined to give it. At my daughter's urging, (she was my primary caretaker) I decided to challenge myself to see if I could do this. Prior to my being diagnosed with breast cancer, we had walked a half marathon for leukemia and lymphoma. Since I now have chronic neurapathy cause by Taxol, I did not believe I could do this type of activity again due to foot tingling and cramping. But training for this event has absolutely empowered me. My first training walk was a mile (after having not walked more than block for the last 2 years); then I walked 3, then 5, 7, 9 and finally 18! The surprise for me was that the neurapathy did not interfere with the walking -- in fact, I hardly think about it when I am walking.

I don't need to tell this group how important education and research are, so I will skip the usual pitch, just if you want to support me (or know more about my personal journey) click on the link below. Any support will be greatly appreciated!

In any event, I hope my story gives you all hope that there is life after treatment, despite how you may feel right now.

Thanks for considering this.

http://www.the3day.org/site/TR/2011/...nal&fr_id=1623
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Estelle
DX 1/09
two tumors; .7 cm and 1.0 cm, same duct
lumpectomy 2/09
10 positive nodes; scans show no further metastasis, Stage IIIc
AC completed 5/09
Tykerb/Taxol (trial) 6/09, terminated from trial (due to bad reaction to Tykerb) 8/09; switched to Herceptin/Taxol
Taxol finished 10/09
Bilateral mastectomy 11/09
Radiation 12/09 to 1/10
Herceptin finished 7/10
NED
Start Vaccine Trial at Hopkins 2/11
Finished Vaccine Trial 11/11
Continue NED
Port Out 11/11
DEIP Flap 4/17)
8 Years NED 2/17
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Old 09-09-2011, 12:55 PM   #2
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Walking the Susan B 3-Day

Estelle,
You are an inspiration. I only finished my Taxol a few weeks ago...and the combination of being out of shape...and neuropathy...wow...I hope someday to be where you are!
Best of luck with the walk!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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