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View Poll Results: Did you have bloody discharge before CA diagnosis?
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yes
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12 |
7.79% |
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no
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141 |
91.56% |
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n/A
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1 |
0.65% |
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03-31-2007, 12:59 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Stillhere's poll question #6
. . . . . .
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04-01-2007, 09:21 PM
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#2
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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as in nipple discharge?
If you are referring to Paget's Disease of the nipple, I DID have Paget's, but it doesn't necessarily manifest with bloody discharge. Mine was more like an excema- dry, itchy, stinging skin around the nipple. I thought it was excema or allergy to bra or detergent that I washed my bras in. Since I had always learned to look for discharge and not these types of symptoms, I had NO idea the first few months that it could be cancer. Not until I went for my yearly GYN exam.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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04-02-2007, 11:55 AM
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#3
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Senior Member
Join Date: Jun 2006
Posts: 44
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Had the same symptoms for Paget's
Like you, BHutchison, I had the same dry, scaly, itching, stinging nipple on the right side. My mammograms were clean as was one ultrasound. When my nipple finally got red, I went for a biopsy with a dermatologist, since the ob-gyn, the im and one other derm. all gave me topical creams.
I was diagnosed in Dec., 2003 and had a mastectomy in Jan., 2004 along with chemo.
BH, can you tell me about the spot on your C2 neck? I've been having some aches in the C6 region and was told it was spinal stenosis of the cervical area, but they are going to give me an MRI. How did the find the spot on your neck and did you have any particular symptoms for that?
Hope you're doing well.
Vicki
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04-02-2007, 12:06 PM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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We saw a spot around C2 last August on my PET, had not shown up on my bone scan 3 months earlier. No symptoms at all. Since we also saw the 3 nodes in my chest shining on the PET, and we knew I was going back on Taxol with my Herceptin tuit de suite - we didn't look at the neck/lower skull spot too much closer. We were confident that treatment would also keep it stable, if it indeed were a lesion. The same spot showed up again on my bone scan this past February, but neither PET or bone scan are good indicators of size or measurement, so my onc and I decided it wouldn't be a bad idea to get a measurement of it for a base-line. I go today for an MRI of the whole skull just to be sure that that little spot is all that is there and to see just how big it is.
Wish I could give you more.... but it is a quiet little spot, or so I hope.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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04-07-2007, 06:04 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: Beavercreek, Ohio
Posts: 67
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Discharge, but not bloody
I had a constant discharge for over one year in the breast that ended up having cancer. That was the reason for mammograms every 6 months. The mamo showed calcifications but no signs of cancer. I'm sure the discharge was a sign that something was going on.
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04-06-2010, 08:18 AM
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#6
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Stillhere's poll question #6
No..........
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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04-06-2010, 02:22 PM
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#7
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Senior Member
Join Date: Aug 2007
Location: Newport Beach, CA
Posts: 161
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Re: Stillhere's poll question #6
Oops, I may have voted twice, because I got this email notice again. I see I've already voted and responded once before regarding this.
Vicki
__________________
Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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04-06-2010, 04:06 PM
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#8
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: Stillhere's poll question #6
I like these polls. Did I miss 1-5?
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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04-06-2010, 04:39 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Re: Stillhere's poll questions 1 through 5
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04-06-2010, 06:00 PM
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#10
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: Stillhere's poll question #6
Hey, Thanks, this is interesting
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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04-07-2010, 07:56 AM
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#11
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: Stillhere's poll question #6
This one brings up some memories!! I had bloody nipple discharge in November 2007 and was told my an OB-GYN (my doctor's partner) that I had fibro cystic breasts and that I should take 400 IUs of Vitamin E 2x/day!!!!! 2 months later Breast Cancer!! So maddening!
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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04-12-2010, 01:35 PM
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#12
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Stillhere's poll question #6
No, none at all!!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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04-13-2010, 07:56 AM
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#13
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Senior Member
Join Date: Mar 2010
Location: Missouri
Posts: 28
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Re: Stillhere's poll question #6
Yes, I had bloody discharge and my nipple was extremely tender. The discharge was very sutle and spontaneous. My family physician did a blood test on the discharge. I was put on an antibiotic for staph infection. One week later, no improvement so I insisted on a mammogram and the rest is history. Within 5 weeks I went from stage 0 to stage IIB - 2.4 cm tumor and I never felt a lump.
__________________
Yvonne
Nov 09 - Grade 3 IDC + Grade 3 DCIS, ER/PR-, HER2+++, KI-67 91%; BRAC 1 and 2 negative
Dec 09 - Mastectomy LB, 2.4 cm, 1/27 nodes, Stage IIB
Jan 10 - Taxotere/Carboplatin/Herceptin (TCH) for 18 weeks (1X every 3 weeks); Herceptin every week for 18 weeks then every 3 weeks 'til week 51
Apr 10 - Blood transfusion to increase red blood cells
Apr 10 - Change regimen to Taxotere/Cisplatin/Herceptin
May 10 - Chemo done!
Jul 10 - Brain MRI normal
Dec 10 - PET scan NED
Dec 30 10 - Last Herceptin
Feb 11 - Port removed
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