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09-21-2010, 08:20 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Melbourne Victoria
Australia
Posts: 330
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jackie(down under) rad for brain mets update
Hi everyone having a 5 day course of wbr for small mets in the cerebellum..had 2 and 3 to go already feeling less sick.
Still on hercetpin for liver and lung but worried about bone mets on L2 that may not be her 2 +. Does herceptin work on bone mets? also my adrenal gland is a bit bulkier as well.
Cheers
Jackie
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09-21-2010, 09:58 PM
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#2
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Senior Member
Join Date: Aug 2010
Location: connecticut
Posts: 41
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Re: jackie(down under) rad for brain mets update
Jackie,
I have followed some of your inspiration posts..so sad to see this happen to you or anyone for that matter however you will scare this shit away again!! You are already doing well.
i hope you know all my positive thoughts are w/you.
sending cyber hugs,
Joletta
__________________
dx- march 2010 age 35 stage 3a 4 of 9 pos. nodes
idc 2.2 ininvasive 7cm of dcis er/pr- her2+
april 15 2010 bilateral masectomy w/ tissue expanders
may 4 2010 port import
may 6 2010 clean ct scan & bone scan
may 11 2010 start 4 A/C (finish aug 3 2010)
aug 17 2010 start weekly herceptine & taxol 12xs (end date of oct 19 2010)
nov-dec 2010 30 radation
(plan permanent implants for feb or mar 2011)
continue on herceptine till aug 2011
Love & prayers to everyone
Joletta
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09-21-2010, 10:41 PM
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#3
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: jackie(down under) rad for brain mets update
Are you on Zometa? Maybe since you are already visiting radiology, some spot radiation on the L2?
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09-22-2010, 02:25 AM
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#4
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: jackie(down under) rad for brain mets update
Hi Jackie
Really pleased that you are getting the little b*****s! Thought Rich had a good point about zapping the other possible bone met with targeted rads. What is your onc saying about more options??
Hold on in there, you inspire so many.
Sending lots of hugs to you down under.
Ellie
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09-22-2010, 08:39 AM
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#5
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Senior Member
Join Date: Jan 2010
Posts: 170
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Re: jackie(down under) rad for brain mets update
Hi Jackie,
Glad to hear you are feeling better! I have been on Zometa since Feb. and my bone mets are gone. I get it every three weeks with the Herceptin. The first dose made my bones ache really bad on the second day after infusion, but it has done the trick for me.
Hope all goes well otherwise.
Take care and rest up,
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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09-22-2010, 12:15 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: jackie(down under) rad for brain mets update
Why do you say that the lesion on L2 may not be HER2?
I know women who have had bone mets crop up over the years, yet stay NED in organs keeping on Herceptin. They go the radiation zap route against the bone mets and it works quite well. Zometa does work for many. It is a short and easy infusion.
Hope the WBR will do the trick. Now they should be checking your brain every 3 or 4 months forever. Do not let them string you out too long about that - even though it is a pain. Better to get that "all clear" or treat early whatever may crop up.
Best wishes for full success this time!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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09-22-2010, 10:19 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Melbourne Victoria
Australia
Posts: 330
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Re: jackie(down under) rad for brain mets update
Hi Steph
The CT scan said the bone mets look like a differentiated cell line. I guess if they are her 2 then herceptin will work on them?
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09-23-2010, 01:58 AM
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#8
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Senior Member
Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
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Re: jackie(down under) rad for brain mets update
Glad to hear treatment has started and you are beginning to feel less sick. Zometa and the chemos and targetted therapies have kept my (multiple) bone mets stable and completely pain free.
Good luck.
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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09-28-2010, 02:19 AM
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#9
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: jackie(down under) rad for brain mets update
Hi Jackie
Wondering how things were going. Please let us know how you are?
Hugs
Ellie
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09-28-2010, 09:01 AM
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#10
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: jackie(down under) rad for brain mets update
Sending much love and prayer. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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