Brain Mets--what do they feel like?

[Nancy L]

Would like to know what brain mets feel like. What did you notice before being diagnosed with brain mets? If headaches, what did they feel like and were they constant, intermittent?.

I have never had headaches in life until about three months ago when a number of things happened to me at the same time. I started to have a headache that was centered from my left ear down my neck-kind of like a severe stiff neck. I also have pain/soreness in my left sinus down the leftside of my throat. Figuring out the root cause is complicated by the trach I had to get during radiation and two teeth that broke off during recent radiation. I am the poster child for BC collateral damage.

I have had a brain scan and two MRIs of my neck in the past three months and nothing found in brain or left neck. Another scan is sceduled ths Friday. i do have a tumor in the right supraclavical and am on T-DM1. I think the BC is causing my headaches but they just can't find it on the scans. Onc is saying referred pain--I find that hard to believe. Wondering if anyone else has had a similar experience. I just want to get rid of the pain.

Thanks for your help. Nancy