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Old 07-01-2010, 11:41 PM   #21
bejuce
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Posts: 504
Re: I'm soooo grateful

Margaret,

Just read your post, thanks for sharing your story and giving us hope. If you're still on these boards, we'd love to hear an update from you to encourage us newbies.

Thanks and all the best to you,

Marcia
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 07-02-2010, 11:40 AM   #22
Renee Hithe
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Re: I'm soooo grateful

Yes, I am excited to have this forum to share and give. My story, well no cancer in my family all the way back to grandparents on both sides but, with said here I am a vessel being challenged to move on and grow. I have brst cancer and its of course her2
10/09-brst dianosed
11/09-chemo/hrcptn
6/10-hrcptn only
I am thankful for the ACS and all it family support. without that I would certainly have been lost. Meeting others who sharedd their stories and love has been quite the blessing so I am Blessed and doing well. If I can be an inspiration to others by sharing and giving I am here.
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Old 07-02-2010, 07:15 PM   #23
Jackie07
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Location: "Love never fails."
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Re: I'm soooo grateful

Renee,

Welcome to the Board. If you used the 'Search' button, you can look up past discussions on 'Lymphedema'.

I had it happened to me just 3 months after my surgery in 2007. Basically it was caused by cellulitis - got some very tiny bug bites while picking figs in the back yard. Was treated with antibiotics and later on got fitted for compression sleeve and glove.

If you like to, you can use the User CP button to edit your treatment history in the signature field. Many of us do that just to make it easier to share tips.

Congratulations to completing your chemotherapy.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 07-06-2010, 10:50 AM   #24
Renee Hithe
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Posts: 7
Re: I'm soooo grateful

Thank You all for your love and support and ideas and support stories. I finally got my sleeve and gautlet as well as my night mit and i love it and it is helping along with the exercises and swimming. I have a good lym. specialist who has helped as lot. As for my treatement with the herceptin i feel great, and my energy is coming back. Thanks Again for sharing, Renee
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