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Old 03-20-2015, 05:53 AM   #1
Hopeful
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Study reveals effective tx for chemobrain

http://www.medicalnewstoday.com/releases/291006.php

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Old 03-20-2015, 04:30 PM   #2
rhondalea
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Re: Study reveals effective tx for chemobrain

Thanks, Hopeful. I order a copy of the study using the PatientAccess link. The cost is $3.50. I'm very excited about this study, because Patty Ganz has been one of our biggest and best advocates, but I haven't seen much from her lately. Had me a little worried, but I'm reassured that she's still working to find answers.

Edited to add link to abstract:

http://onlinelibrary.wiley.com/doi/1....3769/abstract

PatientAccess link:

https://s100.copyright.com/AppDispat...pon.3769%2Fpdf
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2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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Old 03-20-2015, 09:28 PM   #3
Hopeful
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Re: Study reveals effective tx for chemobrain

Rhondalea, I was thinking of you when I saw this. Thanks for all of your posts describing your journey and documenting chemobrain's effects - they are an invaluable record.

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Old 03-21-2015, 06:27 AM   #4
rhondalea
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Re: Study reveals effective tx for chemobrain

Thank you for that. It's very encouraging for me to see this is being worked on because it's something we all have to deal with to varying degrees, and we should never have been left to muddle through on our own.

I have updates--I just can't seem to get to them. Every time I try to organize my thoughts, I get sidetracked. Apparently I'm better at bitchin' than I am at talking about good news. The treatments I've received (and continue to receive) are helpful, and in a lot of ways I'm doing much better.

With this link as inspiration, I'll try to get to it this weekend.
__________________

2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
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Old 04-10-2015, 12:42 PM   #5
knmtwins
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Re: Study reveals effective tx for chemobrain

so this wasn't what I was hoping for, "Ganz and Ercoli found that the early intervention group (32 women) reported improvement in memory complaints and test functioning, while the delayed intervention control group (16 women), did not improve in either their cognitive complaints or test performance." Hummm that sounds like, if you have it, then it might be too late. Someone please re-translate...
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5/24/14 Found by getting a crumb out of my bra.
5/30/14 Doctor couldn't find it, until I put her finger on it, ordered a Dx Mammo
6/3/14 US core biopsy and marker
6/4/14 Dx IDC 1.5cm
6/5/14 ER+ PR+
6/6/14 met breast surgeon
6/10/14 chest X-ray, clear; blood panel, clear
6/12/14 MRI - now sized at 2-3cm
6/11/14 HER2 overexpression
6/19/14 Saw plastic surgeon, will do skin sparing
6/26/14 BRACA new 2014 guidelines BRACA can be run for adopted
6/20 - 7/7 Lots of different ideas, saw 3 oncologists, changed from mastectomy to Neoadjuvant chemo. with Perjetta
7/16/14 Chemo Cycle 1 of 6; TCHP
12/2/2014 Skin sparing BMx, with TEs, SNB
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