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Old 01-24-2007, 12:55 AM   #1
Belinda
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Join Date: Jan 2007
Location: Adelaide, South Australia, Australia
Posts: 144
Another New (and Scared) Member

Hi

Just found your website - and glad to have found it. On Jan 3 2007 I went to check out a sore lump in my left breat and another in my armpit. I walked out with a fistful of appointments for scans and the news that I had cancer, and that it had spread to my lymph nodes, and that there were at least 4 tumours.

Scans showed no evidence that it had reached bones or major organs yet, but on 10 Jan I had a complete mastectectomy, axillary clearance and installation of a port.

First path showed 6 of 19 nodes affected, second lot (results yesterday) showed o-/p- and HER2 positive. Also, the main tumour was 4cm, the total size of the tomours (this must be end-to-end, surely) is 17cm. That's hugely scary. I had bloody discharge from my nipple last march and a ductectomy in June, the path results from that were clear. How could this thing grow so bloody fast?

A scary thing is that none of the tumours, other than in the nodes, showed up on the mammogram (and I have had 3 lots in the past 12 months) - they found them with a very detailed ultrasound.

Seeing the oncologist tommorow am (Thurs) for the first time to get chemo happenning.

I am scared that the cancer I have seems to be so aggressive. I am 42, and have a gorgeous husband and 5yo daughter to love me through this - I am so grateful for them.

I will have Herceptin, apparently, but won't know any more details until tomorrow.

And glad to have found this site.

Kind regards to all - Belinda
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Old 03-11-2011, 04:45 PM   #2
NanaJoni
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Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: Another New (and Scared) Member

arojelaGeop - Please stop with the silly posts to this web forum. The people on this site are dealing with serious, life-threatening issues and you are unkind at the least and cruel at the worst to be here. Basically - go away
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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Old 03-12-2011, 12:52 AM   #3
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,017
Re: Another New (and Scared) Member

I deleted the silly post.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
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