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02-08-2010, 01:41 PM
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#1
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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HER2 Serum Test
I wanted to let all of you know that the oncologist nurse called me Friday, and let me know that my HER2 level has gone from 22.3 to 16.7.
I hope when I took my Herceptin the day of the blood test that the level went even lower.
I started taking Salmon oil three days before the HER2 test. I will continue to take it until tomorrow. I have my lung biopsy on February the 16th.
Could my vaccine have helped to lower my level or could it be the fish oil?
Amelia
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02-08-2010, 02:57 PM
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#2
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: HER2 Serum Test
Great news!
I have not heard of anything about taking fish oil lowers HER2 serum level. It has to be the vaccine. But fish oil is good for us in many other areas. Who knows, there might be a synergy between the two.
Just so happy for you. We love good news... And I'll bet you that the Her2 serum level will go down even lower and the lung biopsy result will be good.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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02-08-2010, 03:41 PM
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#3
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: HER2 Serum Test
Salmon is a good source of omega 3, which is supposed to be very healthy for everyone.
The her2 serum test results should be under 12 to be considered normal, so you are definitely going in the right direction. Congratulations !!!!!!!
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02-08-2010, 08:47 PM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 556
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Re: HER2 Serum Test
May I know what vaccine did you take? I am very interested to know what could be the reason the her2 serum went down by itself.
Thanks,
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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02-08-2010, 10:33 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: HER2 Serum Test
Ameila,
Good luck with biopsey on the 16th.
Best wishes,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-08-2010, 10:34 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: HER2 Serum Test
Also, what is the size of the nodule the dr. are performing the biopsey on?
Have they been tracking and notice a change in size?
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-09-2010, 07:55 AM
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#7
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: HER2 Serum Test
Jackie and Elaine, thank you for your positive remarks. I hope you are feeling better Jackie.
Julie, I did the HER2 Peptide vaccine at the University of Washinton. I finished in June.
Jean, my nodule is 1.3 cm. It was not there on the June PET-CT scan. He was not going to biopsy it until my HER2 level came back high. I hope I go on the 16th and there is nothing on the scan.
Amelia
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02-15-2010, 12:55 PM
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#8
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: HER2 Serum Test
Dear Amelia -
Glad the Her2 test number went DOWN! Hope this is a good sign.
Want to let you know that I am thinking good thoughts for your lung biopsy tomorrow.
Hope the procedure will pass without incident, and that the weather will be nice!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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02-15-2010, 01:25 PM
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#9
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: HER2 Serum Test
Sending good wishes and vibes for tomorrow Amelia. 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-15-2010, 02:45 PM
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#10
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Senior Member
Join Date: Dec 2008
Location: Monterey County, CA
Posts: 37
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Re: HER2 Serum Test
Sorry-dumb question-there's a Her-2 serum test????
Is it used to monitor for recurrence or only for more advanced cases? Sorry to ask this question here- I am having trouble with this site since its format changed and am unable to get the search feature to work. Could someone direct me to more info on this test?
__________________
IDC 6 mm l.b. 3/08 age 49; ER <1%+; PR -; KI67 40%; HER2 +++by FISH; lumpectomy/snb 4/08; extensive dcis found at surgery (didn't show in bx or mammo); micromet in sn; MRI breasts and chest 4/08-NED; re-excision l.b. 5/08; refused axillary node dissection; no ca found in re-excision tissue. TCH q 3 wk x 6 finished 10/08; whole breast rad x 7 wk finished 12/08; refused axillary and supraclavicular rad. Herceptin thru 6/09. Refused tamoxifen & aromatase inhibitors.
1/13 so far so good:-) have vestibular hypofunction from chemo but its all good since now officially on borrowed time!
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02-15-2010, 05:26 PM
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#11
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: HER2 Serum Test
Amelia, Just reading this and wanted to let you know you are in my thoughts and prayers, A het 2 level that is going down is a good thing. also I am just wondering about the nodule in the lung , right? It may not be mets. I'll keep you in my prayers for " good" biopsy report.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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