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Re: Asked why I am stage IV again - clearing up??
It doesn't appear any of the people that responded need an infusion every 3 weeks. This is making me so confused about treatment. My doctor is supposed to be one of the best in Indiana. She is at IU simon cancer center Dr. Kathy Miller which I saw for the first time in February 2014 for a second opinion about simply taking tamoxifen vs. armidex.
I liked her, and I switched to her. Exam in August found a lump and it was a complete and the most depressing thing that has happened in my life. I had hope despite the continued side effects which were getting better from acupuncture. I thought I beat it and to be told it had reoccurred, put my port back in again and no end game anymore....it felt like I was handed a death sentence.
Now, I do get afraid of bumps or different little things going on in my body. Thinking what if it went somewhere else, and I down play things I suppose to her because I am not ready mentally to hear a bad report even if it was good report because what if it's bad.
It seems I am hearing you say you think I am stage 3C and my doctor is wrong. If she was then I wouldn't need all this treatment? Or is she not telling me something.....it all is unknown and that sometimes is harder then the known.
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myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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YEARS NED!
Hybrid Mode
