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04-01-2008, 04:21 PM
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#21
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Marie,
Great news about Ed scan!
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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04-01-2008, 04:38 PM
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#22
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Terrific news Marie!! I am so happy that Ed is doing well!! NED is just around the corner!!
Lexi
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04-01-2008, 04:43 PM
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#23
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Thia is fantastic news! I am very happy for the both of you. Will keep the prayers coming your way!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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04-01-2008, 04:50 PM
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#24
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Awesome News!
Marie, that is just such wonderful news! You tell Ed, the Mighty Oak, to keep on rollin' ! Love, Bill
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04-01-2008, 05:23 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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What wonderful news at the beginning of spring. We hope to keep hearing good news.
Best wishes,
Barbara H.
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04-01-2008, 06:51 PM
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#26
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Marie
I am thrilled with Ed's results and I am so happy for you. Relax alittle now. I think caregivers need extra special hugs and I am sending one your way.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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04-01-2008, 07:30 PM
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#27
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Marie, this is the best news I've heard in a long time. I'm so happy that I'm in tears! Keep that good news coming.
Hugs to you and Ed
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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04-01-2008, 07:48 PM
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#28
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Marie and Ed,
Wonderful news! Come on NED!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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04-01-2008, 07:53 PM
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#29
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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Mighty Oak & Believe
You Are Both A Great Inspiration To Me. Thank You For Sharing Your Journey With Us------You Give Me Hope.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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04-01-2008, 08:12 PM
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#30
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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AMEN!!!!!!!!! This is the best news I have herd in a long time. It gives me so much hope! Way to go Ed!!!!!!!!! I love you all.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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04-01-2008, 09:58 PM
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#31
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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That's wonderful news! Looks like the Mighty Oak found a treatment plan that works for him. He so deserves it.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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04-02-2008, 04:18 AM
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#32
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Wonderful, wonderful news.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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04-02-2008, 10:18 AM
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#33
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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You two are amazing fighters and good examples for us all.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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04-02-2008, 11:27 AM
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#34
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Marie this is the news we 've all been hoping for for both of you...congrats to Ed for being such a fighter through all this and to you for all your care and understanding. Fingers now crossed for the brain scan!!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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04-02-2008, 06:34 PM
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#35
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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I am so happy for both of you! Prayers that things continue going good!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-02-2008, 07:20 PM
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#36
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Guest
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We knew it would come to be
Marie and Ed,
Rejoice in the good times, forget the bad, and always move forward.
This has become my mantra and I hope to always stay this way.
My very best wishes for you 2 as you celebrate a mightly victory against this shameless disease.
Emelie
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04-02-2008, 08:31 PM
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#37
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Senior Member
Join Date: May 2007
Location: DFW area (TX)
Posts: 431
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Keep it running Marie. Best wishes for the 7th.
__________________
Terri, spouse of Ruth, Dallas/Ft. Worth area
Ruth dx 05/01/07 (age 50) Filipino
multifocal, several tumors .5 -2.5 cm, large area
Breast MRI showed 2 enlarged nodes, not palpable
100%ER+, 95%PR+, HER2+++
6x pre-surgery TCH chemo finished 9/15/7 Dramatic tumor shrinkage
1 year Herceptin till 6/08
MRM 10/11/07, SNB: 0/4 nodes + Path: tumors reduced to only a few "scattered cells"
now 50% ER+, PR- ???
Rads finished 1/16/08
Added Tamoxifen,
Finished Herceptin 05/08
NOW is the time to appreciate life to the fullest.
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04-02-2008, 11:28 PM
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#38
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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Dear God, Thank you so much!  I thank you and pray to you for Ed's continued healing and wellness, and I pray the same for all the wonerful, caring people connected to this site with BC! And please Lord, we pray for your miracles to find better treatments and cures for Cancer!  Amen.
I can't contain  my tears of joy! I'm absolutely touched and delighted to hear more positive news for Mighty! Praise the Lord! 
Big Hugs Ed and Marie!
Joanne
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04-03-2008, 09:41 AM
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#39
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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Marie and Ed - I AM SO HAPPY I CRIED!!!!!! What a great day I am having because of this news!
Keep kickin some ass Ed! And you Marie, keep standing by your man. Love to you both!
-kim
__________________
dx 5-05 @42 years old
IDC stage IIA
ER+ (100%) ER+ (75%) HER2+
double mastectomy
4DD AC - 16 weekly Taxol
6 months Herceptin - stopped due to MUGA
35 chest wall rads
Tamoxifen
Lat flap with silicone implant reconstruction on left side due to radiation. "Normal" silicone on right. Finished all reconstruction 6-07!!!
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04-03-2008, 09:49 AM
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#40
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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AWESOME News!
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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