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09-16-2010, 04:36 PM
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#1
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Referral to breast specialist/surgeon--So CA area...
Can anyone here refer me to a breast specialist/surgeon in the Southern Ca area that they have been extermely happy with? Closer to Orange County if possible. I want to avoid driving hrs away if possible. I've asked my PCP, and several other doctors I have seen for a referral to another breast surgeon other then the one I have and they all say they will get back to me and don't. Time is going by...I need to see one now.
If you don't want to post online...pls feel free to PM or send it to my email address. Thanks so much.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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09-16-2010, 05:49 PM
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#2
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Re: Referral to breast specialist/surgeon--So CA area...
Chelee,
I love my breast surgeon - Dr. Lawrence Wagman at the Center for Cancer Prevention and Treatment affiliated with St. Joseph Hospital. You probably remember that I followed him from COH to this new cancer center where he is the Medical Director. His number is (714) 835-8300. I have also heard good things about Dr. Michelle Carpenter, also at the center. I am not so happy with my medical onc that I changed to and will be looking for someone new soon.
Hope this helps.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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09-17-2010, 12:16 AM
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#3
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Referral to breast specialist/surgeon--So CA area...
Gerri,
Thank YOU so much. I will be making an appt with him first thing tomorrow. Hopefully I won't have to wait too long to get in--that's an easy drive for me. Again...thank you. 
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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09-17-2010, 09:49 AM
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#4
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: Referral to breast specialist/surgeon--So CA area...
Chelee, Just wondering ...have you ever been on the tykerb/herceptin combo? I recall you met with Dr. Slamon (how awesome) and discussed the option...Ceesun
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09-17-2010, 02:40 PM
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#5
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Referral to breast specialist/surgeon--So CA area...
Ceesun,
No I haven't been on Tykerb/Herceptin yet. I'm pretty sure that will be my next choice if the Femara quits working.
Dr. Slamon discussed the Tykerb/Herceptin and T-DM1 with me. Two excellent choices. Right now I'd like to get into T-DM1 but that's not looking very good at the moment. I am pretty sure Tykerb/Herceptin will be my next course of trt. Seems to work very well especially on someone like myself that is highly Her2 pos...and highly Er pos. Dr. Slamon said he did not want me on chemo. But I'm pretty sure he doesn't want anyone on chemo anymore...he as you all know is for targeted therapy...he's the "man".
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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09-17-2010, 10:21 PM
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#6
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Senior Member
Join Date: May 2006
Posts: 143
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Re: Referral to breast specialist/surgeon--So CA area...
Hi Chelee:
I LOVE the surgeons at the Joyce Keefer Breast Center, St, John's, Santa Monica. Dr. Armando Giuliano and Dr. Chung. I know that's not as close as you'd like...also they are surgeons, not oncologists. Also recommended is Silvana Martino, oncologist, in Los Angeles.
Good luck
Linda
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09-17-2010, 11:23 PM
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#7
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Re: Referral to breast specialist/surgeon--So CA area...
Dr. Silverstein=Hoag Hospital-one of the best in the country
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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09-17-2010, 11:58 PM
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#8
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Referral to breast specialist/surgeon--So CA area...
Linda and Cal Gal...thanks for both referrals...I still might need them. It's nice to have 2nd and 3rd opinions. Hoag Hospital is easy to get too...so I might check that one out too. I'll make the calls Monday and see which doctor can get me in the quickest. I've been put off so long I want this taken care of. So thanks to all of you. Lots of choices and all within driving distance. I so appreciate it.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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09-18-2010, 07:10 AM
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#9
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: Referral to breast specialist/surgeon--So CA area...
Chelee, Best of luck...seems like you got some good info. Also thanks for commenting on the tykerb-hercep combo for me. I appreciate it. Ceesun
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