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Old 02-15-2012, 04:25 PM   #1
tricia keegan
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Question Danger times of recurrance??
I may be wrong but thought I read here before that 7-8 years was a tricky time for triple positive's?? (Regarding recurrance) or perhaps simply her 2 er's in general, but as I'm approaching seven years this summer I'm curious to know if this is still correct??

Thanks

Tricia x
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-15-2012, 07:14 PM   #2
CoolBreeze
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Re: Danger times of recurrance??
I have never read that and I've read a lot! I think five years was considered a bit dangerous and the reason given is that is when women go off tamoxifen.

Enjoy your 7 years free!
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08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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Old 02-15-2012, 09:43 PM   #3
Delaney
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Re: Danger times of recurrance??
Tricia, I dont think cancer can tell the time!! Seriously though, enjoy your 7 years and more. Look at all the people who have got past the 7 year mark. You probably just get the jitters every now and then. xxx
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 02-16-2012, 07:10 AM   #4
schoolteacher
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Re: Danger times of recurrance??
Tricia,

I am at my four year point, and there was an article two or three years ago about the seven year mark.

Lani, Stephanie, or Becky may know what the discussion was. I can not remember what was being discussed, but it did have something to do with seven years.

A doctor told me that 22 to 26 months is a very critical time for my cancer, and she was right. Between 22 and 26 months, the cancer showed up in my lungs.

Amelia
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Old 02-16-2012, 07:26 AM   #5
Hopeful
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Re: Danger times of recurrance??
Tricia, I believe this is what you were looking for:

http://her2support.org/vbulletin/sho...eferrerid=1173

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Old 02-16-2012, 07:42 AM   #6
schoolteacher
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Re: Danger times of recurrance??
Thanks, Hopeful. I started to put your name too.

Amelia
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Old 02-16-2012, 12:46 PM   #7
tricia keegan
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Re: Danger times of recurrance??
Thanks Amelia and I'm sorry in your case timing was as mentioned and Hopeful, I did a search but could'nt find it so thanks!

Thanks Coolbreeze and Helen for your comments too and yes Helen, I think I always will get a little jittery now and then!
Coolbreeze the article had mentioned if you get past 2-3 years the next risky time was around seven years.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
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