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Old 01-22-2009, 09:33 PM   #1
Vic
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Dexa bone density scan question

My onc. has scheduled a dexa bone density scan for me before we talk about Zometa infusions as a preventative for bone mets. The tech. told me to stop calcium supplements for 24-48 hours before the test or it may show up as a blob on the film. Is there anything else in the protocol to get a good reading? (I'm thinking that they scan you on your non-dominant side, but I'm not sure. I also think they only do the hip, but my friend also had her arm done, because she's got osteopenia.)

Any tips would be appreciated as, if I decide to do the Zometa, and that's a BIG IF, I want to get an accurate test, because the the outcome depends on whether my insurance would pay for the Zometa.

Thank you,

Vicki
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Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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Old 01-22-2009, 10:00 PM   #2
PatS
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Hi Vicki,

Like your friend, I also have osteopenia. I've never been told not to take my calcium before the bone density test, so I don't know if that is normal or not. Also when they do mine they do my left hip and my spine. The test is a very simple one.....you don't even have to get undressed as long as you don't wear any metal .

Pat
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Old 01-23-2009, 05:34 AM   #3
sarah
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I just had mine done and I hadn't heard about not taking calcium, although I suppose it does make sense. I probably should have stopped taking my clastoban (a pill) as well. It would be interesting to know for next year. I take clastoban because Femara was destroying my bone density. It's an easy quick test. sometimes they only do the hip, sometimes some of the colon vertebral. Don't wear metal in your bra. anything metal you will have to take off.
good luck hope the test is good.
sarah
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Old 01-23-2009, 06:33 PM   #4
Becky
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Hey girl

They do the non-dominant side hip or at least tell them too. They also do the lumbar spine and neck.

I was never told to not take my calcium either.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 01-24-2009, 10:36 AM   #5
Henny
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Where I work there are no restrictions on what you can take. We scan the spine and hip.

My dexa scan went from osteopenia to normal after just one Zometa infusion. I'm very curious to see how it will look next year after more zometa

Henny
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Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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Old 01-24-2009, 12:58 PM   #6
Lien
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I never stop my calcium before a Dexa scan. Have had 3. I'm allergic to lots of things, including dairy. Have been taking calcium & Vit D ever since my first pregnancy (almost 14 years). Lost some bonedensity in the first two years of Arimidex use, but it seems to have stabilized. I have been running, though, this summer, and the Fall Dexa even showed a tiny improvement. Go figure!

Love

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 01-25-2009, 01:19 AM   #7
harrie
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I was told to not take calcium the morning of my DEXA.

Question for all of you: How often is it recommended you have the DEXA done? (annually or bi-annually?)
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 01-25-2009, 12:44 PM   #8
StephN
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Wink

Hi Harrie -
My thought is that frequency of DEXA scanning will be different depending on the results of the early ones and whether we are on a hormone suppressor.

I had so much Zometa that it is not necessary for a while and also hormone negative. Getting my vitamin D level up was more of a concern for maintaining the bone health I have.

Keeping up some weight bearing exercise and activity is also part of my routine.

The main thing for people just finished with chemo is to monitor them at that time, and take appropriate steps to either rebuild lost bone or to maintain a good density level.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 01-25-2009, 01:18 PM   #9
tricia keegan
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I was told not to take calcium the day before my dexa and have the scan every eighteen months.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 01-25-2009, 06:35 PM   #10
Henny
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This stopping calcium before the dexa scan is very interesting. One would think calcium circulating in the blood stream or newly taken up in the bone structure would not affect the scan. I'm going to ask one of the radiologist who I work with if there's any literature on the subject.
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Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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Old 01-25-2009, 11:46 PM   #11
harrie
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The annual DEXA is recommended for me because I am osteopenia and am on the AI.
My insurance has denied payment and I am in the process of appeal.
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 01-26-2009, 10:42 AM   #12
Vic
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Thanks for the great information!

Hi Wonderful Women,

Yes, we can! What a fantastic amount of information in a short amount of time!

I appreciate your input and being left-handed will ask that they scan the right hip.

See you online,

Vicki
__________________
Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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