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Old 01-15-2009, 05:53 PM   #1
Midwest Alice
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Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
Red face How to improve MUGA scan

Hi,

I was turned down for a vaccine study because my MUGA scan was not in the normal range. Mine is 48, on the drug Enalapril, and the lowest they would take is 50. My onc ordered a eco and I was hoping it would show a normal range. It didn't. I can't and don't want to get off Herceptin. If I could exercise and get some of this weight off maybe it would help.

Would taking co-Q-10 help me? If so, how much do I take?

Should I ask to see a cardiologist? Maybe a different heart drug would bring it up 2 points.

I am a teacher so I am active all day. I am trying to increase my exercise and get some of this extra weight off.

Any ideas?

Thanks
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Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 01-15-2009, 06:06 PM   #2
Becky
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Location: Stockton, NJ
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There have been studies that 400 mg of CoQ 10 per day improves heart function in some individuals. After an ok from your medical team, you could try it. Work up to taking 400mg per day by taking 50 mg for a couple of days then 100 mg for a couple of days etc. Search this board for info on Co Q 10 as there are alot of threads about it.

I used it during Herceptin and my heart function stayed above 50 the whole time. I don't know if it was just me or if the CoQ 10 helped me or not.
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Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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