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Old 05-07-2013, 02:21 PM   #1
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Jackie07's Avatar
Join Date: Jan 2008
Location: "Love never fails."
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Job's choice

Looked up the PubMed database and found the abstract below:

"Eur J Cancer Care (Engl). 2013 Mar;22(2):261-71. doi: 10.1111/ecc.12025. Epub 2013 Jan 16.

Motives of cancer patients for using the Internet to seek social support.

Yli-Uotila T, Rantanen A, Suominen T.
Nursing Science, School of Health Sciences, University of Tampere, Tampere, Finland. tiina.yli-uotila@uta.fi

The purpose of the study was to describe why Finnish cancer patients choose the internet as a source of social support. The data were collected in May 2010, using an online questionnaire with open-ended questions, through four discussion forums on the websites of the non-profit Cancer Society of Finland. Seventy-four adult patients with cancer participated. The data were analysed using inductive content analysis. The mean age of the participants was 53 years and they were predominantly women.

The most common cancer was breast cancer and more than three quarters of the participants had suffered from cancer for less than 5 years. The initial stimuli to use the internet as a source of social support were the ease of communication and access to information as well as the need for emotional and informational support.

The actual motives that drove the use of the internet as a source of social support were the requirements for information and peer support, internet technology, a lack of support outside the internet and the negative experiences caused by the illness. The fact that there is an enormous need for information as well as for emotional support and that cancer treatment in Finland is concentrated in major hospitals, to which cancer patients may travel a considerable distance, suggests that nurses should learn to make more frequent virtual contact with their patients."


Several factors had prompted me to look up the subject on the PubMed database: 1) a fellow survivor had pointed out there are different degrees of 'suffering' and implied that only patients with certain condition are entitled to express the same degree of pain/suffering; 2) a friend who used to tell others that they had no rights to complain because "Look at Jackie - she's been having the most problems yet she's always smiling and never complain" mentioned the aches and pains she and her husband have been suffering due to old age (they are about 10 years my senior). This was after I mentioned to her my recent problems with the brain tumor pressing on my Thalamus; 3) can't really remember ...

Just wanted to say how thankful I am to this wonderful support group. We can talk about almost anything!

Most people don't like to listen to complaints. Just like Job's friends in the 'Book of Jobs', most people would tell us that we had exaggerated our condition, that we had asked for the suffering, that we should keep it to ourselves, ... etc.

But here we have a safe place to express our anguish, our struggles, and our hopes and prayers ...etc. (You'd be surprised how many 'militant atheists' are out there to 'debunk' any 'superstitious' myths - I can't even express thanksgivings on my Facebook without being 'harassed'!)[No, I won't delete the 'militant' friend - she had been surprised at my rational response because everyone she had 'attacked' had deleted her from their 'Friend' List soon after! Other mutual FB friends have learned to stay out of our debate because (as one had complimented once) we always end our 'rational' conversation with an amicable note.]

Thanks again, everyone, for providing this breathing space ...

Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
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Tamoxifen B. scan
Irrtbl bowel 1'09
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Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
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1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 05-07-2013 at 07:50 PM..
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Old 05-07-2013, 05:00 PM   #2
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Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 1,986
Re: Job's choice

Do I hear an "Amen?" Thanks, Jackie!

Smile On!

Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

11 Years NED
I think I just might hang around awhile....

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