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04-04-2013, 06:03 AM
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#21
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Progression or Necrosis in the brain?
Jill,
Guess what...I was a young mom too...and my sister is one now...I'm used to talking on the phone while being interrupted repeatedly by precious little voices who need mommy's immediate attention. 
Looking forward to a long chat soon!
Till then...thinking of you, praying, and sending love...
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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04-05-2013, 10:20 PM
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#22
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Progression or Necrosis in the brain?
Jill...I just wanted to add my prayers. Im also a member of the brain mets club, and I also have a tumor close to my brain stem.  Reading what Steph and Denise wrote, all I can really offer is make sure you discuss all the options and all the risks thoroughly with your doctors. I'm so sorry that you are going through this. I know it must make it even more difficult having young children who cannot possibly understand what is going on...and that just breaks my heart. Lots of positive energy headed your way...Jody
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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04-06-2013, 09:01 AM
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#23
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Progression or Necrosis in the brain?
Hello all -
a little update for you and the fact that I'm typing this may help my mood, as I get to get things off my chest. (like there's much on my chest literally, haha, funny?)
I am really down. Well, up and down. I am happy that the neurosurgeon and I decided to take a wait and see approach for either necrosis or growth. I will have another MRI in 2 months. I think I am having a really tough time because of my vision. I think it's gotten worse. It's only on one side though. I worry about my other side, even though, I know the chances of that happening to the other side or HUGE, it still scares me. I have to bring myself back to "in the moment" and living one day at a time. I'm a bit of a dreamer, so it's a different life living in the moment. It's nice and peaceful, once I'm there though.
The surgeon also said something about lipids and cholorides or something?!?! How one indicates perhaps regrowth and the other necrosis and it's showing both. Now, I know that these are just scans and it's not under a microscope, so there is really no way of 100% knowing until the darn thing is biopsies, but even that could not show 100% he said. If they went in and only got a sample of necrosis, and there was actual regrowth, then it was for nothing anyway. Argh! I'm frustrated. I'm on a rollercoaster. I feel like I need help. I feel like I talk about it too much with my family and they may be getting drained. I also feel that I was feeling fine, just a couple of headaches, but since I started dex, I'm dizzy now. I want to up the dex dose though, because we are going on a plane tomorrow and I don't want any problems. Dex is no friend of mine, or my fella! lol poor guy.
Anyway, thanks for letting me went.
I really love you all. You have helped me so much.
Love Jilly xoxo
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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04-07-2013, 10:49 AM
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#24
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Progression or Necrosis in the brain?
Jill,
My advice...take the dex. Swelling is BAD. Vacations in Florida...VERY good!
Get on that plane! Relax! Enjoy!
Don't forget to pack the Ativan too!
Talk to you soon!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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04-15-2013, 01:03 PM
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#25
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Progression or Necrosis in the brain?
Thanks Ceesun.
Update: Going to taper down on the dex. From 8mg to 4mg, then see what's it's like to go off completely.
I'm back from Florida and MARRIED!!! I'm Mrs. McCullough.
Got married on Anna Maria Island Beach, just the four of us. (my little family)
Anyway, I am still trying to cope with the uncertainty of this brain poop.
I feel like I'm fine,, but get really scared about my vision. I just want my vision to either stay the same or get better. NOT WORSE!
I've been thinking to everything you've all said/written, and I hold on to all of it really tight when I go to the dark place, so I can grab on to the hope that you have given me and yank myself out. I love you ladies for your help.
I have an appoint with my onc tomorrow to talk to her about lapatinib or a clinical trail. I really want drugs, but she doesn't want to drug me if my brain is NED. I feel like I'm constantly having this discussion with her. I don't know what to do. My SRS doc said I should be be on a drug, so what gives?
argh.
anyway, chat soon.
xo Jilly
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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04-15-2013, 05:58 PM
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#26
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Senior Member
Join Date: Jan 2012
Posts: 362
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Re: Progression or Necrosis in the brain?
YEY!!!! Congrats on your wedding! So happy for you and your little family. How wonderful.
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.
www.mychemobag.org
www.facebook.com/mychemobag
8 YEARS NED
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04-15-2013, 06:07 PM
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#27
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: Progression or Necrosis in the brain?
MARRIED!!!!! How perfectly wonderful. Blessings on you and your family!
Keep the faith. XOXO
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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04-15-2013, 07:06 PM
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#28
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Senior Member
Join Date: Jun 2012
Location: San Diego
Posts: 33
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Re: Progression or Necrosis in the brain?
Congratulations on getting married. I wish you and your family all the best. I hope you follow up MRI is ok.
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04-17-2013, 10:59 AM
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#29
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Progression or Necrosis in the brain?
Jill,
Congratulations on your wedding !!! Love it!!
Joan
xo
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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04-19-2013, 10:57 AM
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#30
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Progression or Necrosis in the brain?
Oh my goodness, congratulations on your marriage! It sounds perfectly wonderful on the beach with your family...I never traveled much (read at all) because I was always a single mom and couldn't afford it, but for my 40th birthday I was finally able to go with my family to Florida, Amelia Island, and I just loved it! I would have stayed forever. Of course, I live in Kansas (ummm, not very scenic..lol), so it was a big change for me.
I hope the appointment with your onc went well, and you have agreed on a treatment. Lots of prayers and positive energy headed your way, and congratulations again.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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04-19-2013, 12:48 PM
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#31
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Senior Member
Join Date: Feb 2013
Location: Lincoln, NE
Posts: 265
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Re: Progression or Necrosis in the brain?
Huge Blessings on your marriage!!! Beautiful!!! <3
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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04-20-2013, 07:31 AM
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#32
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Progression or Necrosis in the brain?
Thanks ladies,
Nice to hear some good news for a change.
Trips are nice. Nice to get away and "try" to forget about everything else.
I wait another 4 weeks to have another MRI and then we will see what to do from there. A drug may be on the horizon. Hopefully something works for me and I'll have more good news to tell.
Love all your comments and congratulations. You all make me smile.
KsGal, I'm glad you got to finally go to Florida. It's such a nice, relaxing, sunny place. Love the oranges, sandy white beaches, and SEAFOOD!!!!  I get it. I live in Oshawa, ON Canada and it is NOT scenic here at all!!! We always planned on moving to the East Coast here in Canada, but stupid cancer decided to make an appearance and has put a bit of a delay on our future plans. I am still dreaming of it though.
Jill
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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04-21-2013, 05:44 AM
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#33
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: Progression or Necrosis in the brain?
Congrats Mrs. McCullough! Sounds like you had a wonderful time with your family, I'm glad.
Hope you have great news on that MRI in four weeks and that your vision improves soon.
Paula
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04-22-2013, 08:21 AM
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#34
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Progression or Necrosis in the brain?
Thank you Paula. xoxo fingers crossed! much love
Susan, hugs. Thank you.
I'm very happy to be Todd's wife, finally.
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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04-23-2013, 04:19 AM
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#35
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: Progression or Necrosis in the brain?
Your new avitar looks great! You look beautiful and radiant and what a lovely family you guys make together.
Did you get married on the beach?
Wishing you the best,
Paula |
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04-23-2013, 06:25 AM
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#36
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Progression or Necrosis in the brain?
Thanks Paula! xo
That's very nice of you to say. We got married on Anna Maria Island Beach, FL. It was 6pm, the perfect time for a beautiful sunset.
It was such a great day!
Good memories.
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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05-13-2013, 11:22 AM
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#37
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Progression or Necrosis in the brain?
Hello my pals!
Here is my update, in case some were wondering.....
Doc called today and said I look "stable"? WT? OMG!!!
I am very happy with this word. The last time I spoke with him, it was all about progression talk, today it seemed more radiation effect/scarring/necrosis talk.
This also made me happy.
So, next....get me off of these darn devil pills, and wait for another MRI in 6 weeks!
I also asked him if he thought I should go on Lapatinib and he said yes, as it penetrates the brain. I said, well, I'll have to convince my ONC, he said....I'll talk to her!! yipeeee......
So next stop...Lapatinibville, no biopsy, and a trip to NYC!
Take care all and thanks for your prayers, words, love, hugs, and all things positive. I wish more positive for all of you.
xoxo Jill
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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05-13-2013, 05:47 PM
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#38
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Senior Member
Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
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Re: Progression or Necrosis in the brain?
Hi Jill, just wanted to chime in and say "WOOHOO". that is great news! Stable is such a fine word, isn't it?
Congratulations on your recent wedding also, how magical having it on the beach. I think I will google now, and see where you were! I am such a sticky beak, like to know everything!
I have absolutely no knowledge on brain mets, but just wanted to send you good wishes from Australia
Dawn xx
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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05-14-2013, 08:22 AM
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#39
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Senior Member
Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
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Re: Progression or Necrosis in the brain?
Thanks Sticky beak. lol
We got married on Anna Maria Beach in Florida. We even have a slide show on Youtube, which I found randomly. I didn't post it! lol weird. Thanks for the Australian wishes. I must get back there one day!
xoxo Jill
__________________
[
Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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05-14-2013, 11:05 AM
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#40
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Progression or Necrosis in the brain?
Jill!
Woo Hoo!
Yay you!!
OMG!!!
Could the news be any better!??!
I'm doing the happy dance right now!!
When you arrive in Lapatnibville, look me up! I'm on the corner of Avastin
Alley and Tykerb Terrace. You can't miss my place, my lawn is littered with empty Decadron prescription bottles!
Seriously...the wedding is still the MOST awesome life event lately...but this has to be a close second!!! Yay again!!!
Sending a GIANT hug to you!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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