news on trastuzumab-dm1/ itsa GO

[Mary Anne in TX]

I tried to find out that very thing in San Antonio, but did not find anyone who said to do more than a year. I did 2 1/2 years and would like to have done more, but insurance finally wouldn't go further. Did anyone else hear anything different? ma

[robind]

Mary Anne in Texas;

I don't know very much about the study and am so new with Herceptin.
However, I know a woman (42) stage 4, will be on Herceptin for the rest of her life.
You mentioned your insurance company has stopped covering your continuing with Herceptin...that just doesn't seem right. Can you appeal that decision, can your treatment center (oncologist) get involved?
However, and I don't know if you mentioned you are taking a aromotose inhibitor like Femara or Arimidex, perhaps the Herceptin you were being given did the necessary job it was supposed to and you are good to go.
Sorry I haven't been much help.
Best to you,
robind

[StephN]

Hi -
I heard last week that my cancer center in Seattle is in the final phase of agreement to participate in the T-DM1 trials.

Do not know the details as to WHICH trial or phase, but might find out in the next few days when I go back. Just heard that they have patients lined up to enroll.