 |
|
12-16-2003, 03:57 PM
|
#1
|
|
Guest
|
Well ladies I am sitting here on my own and just got the news I didn't want to hear. I can't ring anyone and tell them the bad news because I haven't got over it yet myself. The lump on the right side of my neck, which I have been trying to get sorted out since June has cancer cells. Radiation has been suggested. I rang for the result at home because if I am to get bad news I would rather not be in a public place. So much for my CA-15 marker being 7. I guess I need encouragement now, I still have my fractured left shoulder which has now caused me to have RSI in my right shoulder because I have to use it more and I can't take anti-inflammatory tablets because it causes fluid on my lungs and around my heart, where does it all end. One good thing my Thyroid is beautiful but I now have 2 leaking Mitral valves instead of one, I don't do anything by halves. I see my onc on Friday and she tells me to remain positive, I don't know where this will put my reconstruction or should I even bother, this year has been one of the worst since I can remember. Looks like I am going to have to surf the net for some more big guns. No doubt I will back to my old self soon, but I just had to share with someone, and wipe the tears off my key board.
Love & Hugs to you all.
|
|
|
|
|
12-16-2003, 10:40 PM
|
#2
|
|
Guest
|
Lyn,
So sorry to hear about your news. Hang in there. You've beat this thing so many times and you'll do it again. You've just got to put those ole boxing gloves back on. Just wanted you to know I'm thinking of you and keeping you in my prayers.
Hugs,
kathy
|
|
|
|
|
12-16-2003, 10:42 PM
|
#3
|
|
Guest
|
Hang in there Lyn.....
we're all rooting for ya!
You're going to get through this!!!
Lots of hugs
el
|
|
|
|
|
12-16-2003, 11:04 PM
|
#4
|
|
Guest
|
Lyn,
You surely received some rotten news. The news is something we all dread and worry about. I am sorry that you can't have a bit of a break from all of this. But, with faith and hope and courage, you will persevere!!! Pull out the ammuntition you've had in reserves for this possiblity and go after this crummy disease. You CAN put yourself back to NED!!!!!!!!!!!!!!!!!
God Bless and Keep you.
|
|
|
|
|
12-16-2003, 11:10 PM
|
#5
|
|
Guest
|
I'm so sorry, Lyn. I wish I could give you a big hug. Just hang in there and stay positive. You'll get through this!!
shelley
|
|
|
|
|
12-17-2003, 12:00 AM
|
#6
|
|
Guest
|
Lyn, I am sorry. I know you will get your emotions on track again soon and that you will return to your fighting self! We are with you.
Jane
|
|
|
|
|
12-17-2003, 02:07 AM
|
#7
|
|
Guest
|
Hi Lyn: I am with you, am going through, the same thing myself. Its sucks to be going through all this around the Holidays. Trying to determine which way to turn. Have to keep our heads up and be brave. All my friends say maybe, there will be a cure over night!! You are in my prayers. Big hugs to you. Sandy
|
|
|
|
|
12-17-2003, 02:33 AM
|
#8
|
|
Guest
|
Lyn, I'm so sorry to hear this. I'm sending you BIG, BIG HUGS...I know you will find something to knock this on it's keester. You've been such an inspirition for all of us when we needed you, now I hope we can return the favor and give you the boost you need. The tears are good, they'll help wash away the despair and then you'll be ready to fight, fight, fight!
Love and more BIG HUGS,
Lolly
|
|
|
|
|
12-17-2003, 04:52 AM
|
#9
|
|
Guest
|
I hate to hear this. Such a rollercoaster we're all on. Just remember to breath and take this one day at a time.I'm sure you will continue along the healing path after this detour.
Much love and light,
Lisa
|
|
|
|
|
12-18-2003, 03:06 AM
|
#10
|
|
Guest
|
Lyn,
Sorry to hear of your news. It always seems to knock it out of you just when you think things might be going along just fine. There's always hope - please do not give up. We are all pulling for you.
Kitty
|
|
|
|
|
12-18-2003, 05:09 AM
|
#11
|
|
Guest
|
Hi Lyn: I'm so sorry that you have recieved such depressing news. I wish I had some kind of magic wand that I could wave for you (and everyone else) and make this horrible disease go away. We try to appear strong for loved ones when we are really crying on the inside. Remember, whenever you need to talk about how you REALLY feel or just to get things off your chest we will always be here for you. Be gentle with yourself and give yourself some time to adjust to this new set of circumstances. I really do feel that there is a combination of drugs out there that will do the trick for you. Take Care, Linda
|
|
|
|
|
12-20-2003, 03:52 AM
|
#12
|
|
Guest
|
Dear Lyn
you have been so supportive to so many including myself. i wish I could help you now. I know you will get throught this and we are with you.
love
Linda
|
|
|
|
|
11-01-2007, 04:59 PM
|
#13
|
|
Member
Join Date: Nov 2007
Location: In a fixer upper on the east coast
Posts: 11
|
Dear Lyn,
I'm new here, but not to this beast called breast cancer. In my mind I am giving you a hug and telling you I will be there for you, my hand is offered. You and all are in my prayers. LizDT
|
|
|
|
11-01-2007, 05:46 PM
|
#14
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Oh, Lyn, what a deal! I'm so sorry that you got rotten news. But I just know that you will fight the good fight and do battle once more. Please be sweet to yourself and call someone who can put their arms around you and hug you tight! Lots of love, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
11-01-2007, 06:14 PM
|
#15
|
|
Senior Member
Join Date: Jun 2007
Posts: 2,210
|
Lyn, it's okay to have that cry tonight too. Then start tomorrow ready for action.
Keep the faith.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
|
|
|
|
|
11-01-2007, 07:37 PM
|
#16
|
|
Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
|
Lyn;
I am so sorry to hear your news. I had a tumor in my supraclavicular node which they blasted with radiation. It's a bit of a mess there but that was three years ago nearly and my most recent ultrasound of the neck showed no tumors.....SO.....in addition to all the other stuff they will give you....radiation does work!!. Hang in there. We're all here for you.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
|
|
|
|
|
11-01-2007, 07:55 PM
|
#17
|
|
Senior Member
Join Date: Feb 2006
Posts: 1,014
|
I am so sorry, it's got to be awful to get this news. Once you digest it, you will be ready to fight again. you are in my thoughts and prayers..sherryg
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
|
|
|
|
|
11-01-2007, 08:28 PM
|
#18
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Maybe I am wrong, but isn't that post a old one from our dearly missed and loved Lyn? Its dated 2003.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
11-01-2007, 08:38 PM
|
#19
|
|
Senior Member
Join Date: Oct 2005
Posts: 823
|
OK I have noticed several times that OLD, OLD posts just show up all of a sudden.
This particular one was dated 2003.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
|
|
|
|
|
11-01-2007, 08:57 PM
|
#20
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
These old posts do come up once in a while. What happens is that someone reads the message and doesn't notice the date and replies to it.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
| Thread Tools |
|
|
| Display Modes |
 Linear Mode
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 04:08 AM.
|
