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Old 06-03-2018, 09:19 AM   #1
Ruth
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Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
15 years & counting....

This place was such a huge source of comfort for me for many years. The women and men on this site gave me hope and encouragement. I hope that by me posting today I will help someone too.

Since I was diagnosed 15 years ago today, my little baby Emma is now 15 too. She’s got her learners license and will be a sophomore in high school this fall. My boys are finishing up in college and my husband and I are trying to figure out what our next adventure will be for this summer. We always go away for a trip, just the two of us & enjoy life as much as we can even if we can’t afford it ��

Hugs to everyone!
Ruth

PS I edited this to try to add a picture but can’t seem to add anything! I was hoping to put a current picture in but it wouldn’t let me or I’m just not tech savvy enough ��
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[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED

Last edited by Ruth; 06-03-2018 at 09:48 AM.. Reason: Can’t add a picture
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Old 06-03-2018, 01:55 PM   #2
tricia keegan
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Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: 15 years & counting....

Ruth, many congratulations and here's to many more healthy happy years to you and your family!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-03-2018, 08:02 PM   #3
Melissa
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Location: Virginia
Posts: 116
Re: 15 years & counting....

Ruth,

I'm so happy for you! Your baby is a sophomore - So is mine 😀
Twelve years ago I came here for help/hope so I know when you posted you helped many!
Thanks a bunch,
Melissa
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Melissa

04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin

04/2022 - 16 year survivor!
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Old 06-04-2018, 07:26 AM   #4
jra40
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Location: Pittsburgh, PA.
Posts: 260
Re: 15 years & counting....

Wonderful post - congratulations and cheers to many more years of happiness!

Congrats Ruth,

Jessica
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11/17/10 - Diagnosed with 4.5cm tumor in right breast, IDC, Stage 2, Nuclear grade 2, ER+ PR+ HER2+
12/13/10 - Lymph node biopsy - negative
12/28/10 - Started neo-adjuvant treatment along with clinical trial with 4 rounds of AC chemo every 3 weeks
3/15/11 - Began weekly Taxol/Herceptin infusions along with 750mg of Tykerb taken by mouth daily
6/28/11 - Finished last cycle of Taxol
7/27/11 - Breast MRI shows tumor has dissolved, remarkable reaction to chemo
8/31/11 - Lumpectomy, Sentinel Node biopsy. Node negative, clear margins, 7mm of cancer left over from chemo.
10/05/11 - Started radiation, 5 days a week for 7 weeks.
11/8/11 - Finished radiation
3/21/12 - Last Herceptin!
3/26/12 - Port removed!
Tamoxifen for 5 years
8/4/15 - Hysterectomy & bilateral salpingo-oophorectomy. Due to large fibroids. No cancer!
8/8/15 - Started Arimidex
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Old 06-05-2018, 08:20 AM   #5
Cathya
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Location: Ontario, Canada
Posts: 752
Re: 15 years & counting....

Ruth; I'm so happy for you. Your story just touches my heart. Much health and happiness to you and your family.

best wishes,
Cathy
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Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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Old 06-06-2018, 02:01 PM   #6
lkc Gumby
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Posts: 437
Re: 15 years & counting....

congratulations Ruth !!! so Happy for you.,. I just hit 13 years and loving life!
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 06-07-2018, 04:50 PM   #7
caya
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Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,320
Re: 15 years & counting....

Congrats Ruth! I have a friend who was also diagnosed when she was nursing her fourth son. She is now 26 years out!


all the best to you
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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