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Another 8 year gal....ME

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06-30-2013, 03:10 PM	#21
Mandamoo Senior Member Join Date: Jul 2011 Location: Melbourne, Australia Posts: 432	Re: Another 8 year gal....ME Wonderful news!

07-02-2013, 04:45 PM	#22
lkc Gumby Senior Member Join Date: Feb 2006 Posts: 437	Re: Another 8 year gal....ME Hi MaryJo, So glad to see you. It's been some ride, huh? Congratulations and welcome tot he 8 yrs club. __________________ Linda Dxed Stage IIIC May 05, 12 pos nodes er/pr -neg,Her -pos LVI Right partial mast & partial axillary dissection-June14,2005 Right modified mast-no clear margins- June 30, 2005 DD AC x4 Taxotere X4 with Herceptin Rads x 35( 5 fields ) Left prophylactive mast( atypia & hyperplasia found ), put on Tamoxifen x 1 yr; D/ced due to endometrial thickening bilateral recon (saline implants)May 06 Nipple recon July 06 metformin 2010 removal of implants due to severe encapsulation, insertion of gummies 2013 Reclast Q yr NED!!!

07-02-2013, 05:24 PM	#23
norkdo Senior Member Join Date: Jul 2011 Location: ottawa canada Posts: 367	Re: Another 8 year gal....ME This raises my hope and spirits. It's really important for us newer folk to hear this!!!!!!! Thank you so much!!!! __________________ fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew." found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet. diagnosed may 10 2011 mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b. her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals. radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see..... 10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012. Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh. I have a blog where I document this trip and vent. www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore

07-02-2013, 05:32 PM	#24
Laurel Senior Member Join Date: May 2008 Location: Hershey, PA. Live The Sweet Life! Posts: 2,005	Re: Another 8 year gal....ME Whoop, Whoop! Happy to share in your good news!!!!! __________________ Smile On! Laurel Dx'd w/multifocal DCIS/IDS 3/08 7mm invasive component Partial mast. 5/08 Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH 0/5 nodes 4 AC, 4 TH finished 9/08 Herceptin every 3 weeks. Finished 7/09 Tamoxifen 10/08. Switched to Femara 8/09 Bilat SPM w/reconstruction 10/08 Clinical Trial w/Clondronate 12/08 Stopped Clondronate--too hard on my gizzard! Switched back to Tamoxifen due to tendon pain from Femara 15 Years NED I think I just might hang around awhile....

07-03-2013, 05:37 AM	#25
LeahM Senior Member Join Date: May 2012 Location: Bethlehem PA Posts: 395	Re: Another 8 year gal....ME You give those of us just finishing treatment hope! God Bless! I wanna join your club! __________________ 39 year old wife, mother of one and nurse. April 20, 2012: Dx Invasive Ductal Carcinoma April 25, 2012: ER+(5%), PR-, HER2+++ May 10, 2012: BRCA 1,2 Negative May 23, 2012: MUGA Scan EF 70% May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed June 5, 2012: Drains OUT! Ahhhh.. June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early" July 10, 2012: Started 6 rounds of TCH with weekly H Sept 5, 2012: MUGA 65% Sept 20, 2012: CAT scan of brain clear! Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013. Nov 19, 2012: Port out! Dec 5, 2012: Started radiation Dec. 10, 2012: MUGA 65% Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER! Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013. Jan 29, 2013: Begin 5 years of Tamoxifen. Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months. Mar 6, 2013: EF 60% May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good! June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms... June 11, 2013: EF 60% June 25, 2013: Last Herceptin. wow... Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures. Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on. Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this. Feb 2014: Tumor markers within normal limits. May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts. Oct 2014: Tumor markers within normal limits. May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt? Nov 2015: Tumor markers WNL. Follow up bone scan clear. Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know. June 2016: Tumor markers WNL. Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia. Nov 2016 Brain MRI clear. Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know. www.onmywaytosurvivorhood.blogspot.com www.thechemobag.com www.facebook.com/thechemobag

07-03-2013, 09:00 PM	#26
Jean Senior Member Join Date: Oct 2005 Location: New Jersey Posts: 3,154	Re: Another 8 year gal....ME Mary Jo, Amazing how swiftly the 8 yrs. have passed. Congratulations on the big 8 a milestone. Sending you hugs, Jean __________________ Stage 1, Grade 1, 3/30/05 Lumpectomy 4/15/05 - 6MM IDC Node Neg. (Sentinel node) ER+ 90% / PR-, Her2+++ by FISH Ki-67 40% Arimidex 5/05 Radiation 32 trt, 5/30/05 Oncotype DX test 4/17/06, 31% high risk TOPO 11 neg. 4/06 Stopped Arimidex 5/06 TCH 5/06, 6 treatments Herceptin 5/06 - for 1 yr. 9/06 Completed chemo Started Femara Sept. 2006

07-07-2013, 04:54 PM	#27
cleoland Member Join Date: Feb 2012 Location: Miramar, FL Posts: 9	Re: Another 8 year gal....ME Congratulations!!! I am so happy for you __________________ Clear mammo Jan 2011 Shingles March 2011 Found tumor on right breast May 2011 Dx jun 24th 2011 ER/PR- HER2+ Grade 3 stage IIB IDC Spread to lymph nodes Neo adj chemo TCH Jul-Nov 2011 Lumpectomy/24 lymph nodes removed 11/30/2011 Pneumonia/infection hospital 12/13-15/2011 Radiation Jan-Feb 2012 Herceptin July 2011-2012 MRSA 4 times 2012, completed clinical trial Chemo Neuropathy, lymphedema on right arm, Fibromyalgia, Hypothyroidism, Type 2 Diabetes, Sleep Apnea, Hiatus Hernia and GERD.

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