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Old 07-06-2007, 06:15 AM   #1
Joy
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Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
tykerb/xeloda update

Hi gang, just wanted to share that-I GOT THE TYKERB RASH! While on my vacation I started breaking out on my chest and face like a teenager. I'm trying to be excited about that, but I'm really self-conscious. I am getting a handle on it now though and being back in an insanely DRY climate vs. the pleasantly more humid one, had probably helped a bit too.

I have my first scan on this tx on July 20th, i think. But, I did ask about my last couple of chemistry panels-which I stopped monitoring obsessively a while ago. I found out a) my alk phos got pretty damn high awhile back b) ALT/AST values quite a bit outside of the normal range AND c) as of last weeks blood draw the ALT/AST are almost normal and the alk phos is plummeting. I ask the NP if this was possibly a direct result of reduction of tumor burden and she said confidently yes. Between that and the rash we feel pretty good about things. The CT will of course, I'm trying to think, will confirm goodness.

I have some transient mouth sores-in the same places I had stubborn mouth sores on xeloda/taxotere/hercepitn 5 years ago! I have hand foot stuff that is bothersome, but tolerable. Although, I've been complaining some and I need to stop that.

Soooo, i hope I'm joining the ranks of the t/x successes. And I want to thank all of you for posting your results of this whether good or not so much.

loves, me
__________________
with love and gratitude,
joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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