Hi everyone!
First off, I would like to thank all of you for your emails & especially the prayers. THANK YOU, THEY ARE ALL APPRECIATED!
I would like to keep you informed on how my scans came out on my treatment of Xeloda & Tykerb which I started June 5th. I just got the results last night.
Though being disappointed on the vague description given by the radiologist, but very happy with the results!
First of all.............
THERE IS NO NEW METS ANYWHERE! The liver is back to normal size and normal function!! The tumors have "diminished in size". The bones are showing many places of healing!!
I told the doc I was not happy with the vague description by the radiologist and he offered to get copies of my scans (on CD) and also the
horrific CAT scan in May and sit down with me to look and compare the two. I said, (of coarse) great! So we will do this at my next appt (in 3 wks).
Here's where my question comes in:
The doctor was not happy with my Muga scan. It was 50% down from 61% in January. Being I am the doc's first (maybe only) patient on Tykerb he does not know the protocol of what to do when the Muga score drops this much. 50% is the bottom of the "normal range". He said it will be either
(1) stop Tykerb for a while. (2) cut back the dose of Tykerb, or (3) continue with the same dosage and monitor the heart more frequently. I told him I was rooting for #3!!!!!
I just want to know of others who have had this same experience and at what point did the doctor take action and what action did he take? I am just trying to get a feel of what to expect in 3 wks when I see him again.
My doc is also leaving, moving to Chicago
So those of you in Chicago that may get him as your doctor he is a good doc and very willing to work with you (as you have read above). His name is Ervin Hire, He is a nice man and I will miss him so.
Marie & ED, "Keep Believing", I have faith that you will be getting similar results soon!
Love & hugs,
Michelle
Muga results question & CAT scan results
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