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Old 09-21-2009, 07:05 PM   #1
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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~It Won't Be Long Now! Poor Mighty Oak!!~

It won't be long now. I ask for pleasant peaceful thoughts and prayers as we walk to the end of this journey. He told me he is not going to make it any more than a few days.

Please pray for him to be taken quickly, he is so sick and frail. Hospice has different views this week. I am losing him to the _____ing disease and I am bitter and angry!!

A part of me feels already dead as I watch this disease steal what little is left. I am so lost and broken I do not know how I am going to make it through.

FU cancer, I will never be done with you!!! I have not even touched you yet!!
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 09-21-2009, 07:42 PM   #2
Yorkiegirl
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Oh Marie DAMN, DAMN this DAMN CANCER. Please know that you and Ed remain in prayers.

I pray this end of the jouney is peaceful for Ed.

I wish I was close to just give a a big hug. Please know many, many prayers are being said.
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Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
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Old 09-21-2009, 07:48 PM   #3
caya
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Sweet Marie

My thoughts are with you and Ed, I am praying for a peaceful passage for Ed.

You are stronger than you know, you will make it through - we will all be here whenever you need us.

xo
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 09-21-2009, 07:51 PM   #4
Patty F
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

I am also praying for a peaceful passing. Marie please know that you and Ed are loved.
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10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
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Old 09-21-2009, 07:59 PM   #5
jml
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Praying for serenity for Ed and may you both find comfort & peace in the love you share and will always live in your heart.

God bless, Marie through this transition.
Stay strong, sister and when you can't, lean hard.
We are all here for you~

Jessica
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Old 09-21-2009, 08:20 PM   #6
Brenda_D
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Marie, I pray for peace for both of you. You've both been through so much, I pray for a peaceful end.
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Old 09-21-2009, 08:39 PM   #7
notamrnpsn
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Unhappy Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Dear Marie, my heart breaks for you both. you have fought the good fight as they say. I really hope that your Mighty Oak slips away peacefully and you are by his side like always. you truly were a great team. This damn disease sucks, too many good people suffer.
My thoughts and prayers are with you both, Jeanette
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Old 09-21-2009, 09:10 PM   #8
Faith in Him
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Marie,


I'm am praying for Ed and I pray that you find comfort in the love that you share. We're always here for you.

Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 09-21-2009, 09:17 PM   #9
ElaineM
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Wink Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

I add my prayer for Mighty Oak - Ed. Hugs to both of you !!
Marie you will be okay.
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
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"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 09-21-2009, 09:27 PM   #10
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Wink Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

I add my prayer for Mighty Oak - Ed. Hugs to both of you !!
Marie you will be okay.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 09-21-2009, 09:35 PM   #11
alicem
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Marie,

My prayers are on their way.

Alice
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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Old 09-22-2009, 01:24 AM   #12
mcgle
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

I have been following your story, Marie, though rarely post anymore, but just had to add my hope that your husband's passing will be as peaceful as possible, and that you may gain strength and support from all the wonderful women on this site.

Mcgle (UK)
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Old 09-22-2009, 03:37 AM   #13
Pam P
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

I have no words to convey my sorrow for what you and Ed are facing - my thoughts and prayers are going out to you both.
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6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
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Old 09-22-2009, 04:13 AM   #14
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

My words fail. My heart breaks for you. May god comfort you both. Prayers and hugs.
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 09-22-2009, 04:54 AM   #15
Mary Anne in TX
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Marie, I'm praying that God sends many angels to circle Ed's bed and your heart. May they lift you beyond the hurt and give you minutes of comfort and peace as you have done for Ed so many times. So many prayers fill the heavens for ya girl. One minute at a time with God's angels and the warriors prayers and love. May you be chased down by blessings for the love and care you have given Ed and all of us. Luv U muchly, ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 09-22-2009, 05:01 AM   #16
Lori R
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Dear Marie and Ed,
You both continue to be an incredible example of how beautiful a loving relationship can be. A supportive partnership through the journey we all are on.

Marie, please take comfort in the knowledge that Ed will ALWAYS be your partner, supporting you through your upcoming challanges. You might not be able to see him but he WILL be here for you. I am hoping you can tap into that knowledge that you will not be alone.

I am pleased to hear you say that you are going to continue to fight this X*&# disease on behalf of Ed and all of your sisters and brothers who love you so dearly.

Blessings to you and Ed....Love....Lori
__________________
2007
Oct - Diagnosed - Stage IV
5 c.m. IDC - Left Side er/pr- Her2+++
Node + 2/14 - Single Liver Met
Double Mastectomy
Nov - Begin T+H
2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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Old 09-22-2009, 05:17 AM   #17
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Unhappy Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

((((((((((((((((((((((Marie))))))))))))))))))))))) )

Mighty Oak has had a long hard battle and he fought it with all he had, and you fought this battle with him. May the end be peaceful and gentle.

Your in my every thought and pray, please call if you need anything.

Randi
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Old 09-22-2009, 06:29 AM   #18
Soccermom
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

From me as well,Ed and Marie
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Old 09-22-2009, 06:30 AM   #19
alicem
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Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Marie,

You know my heart and so I hope you accept that what I write here is with the best of intentions. I just feel the need to share this with you in hopes that it will be helpful.

As I shared with everyone here, my father died on April 4th - he was 88. We had called in hospice on April 2nd. At that time, they told us he was in the "pre-active" stage of dying and that he would pass in about 2 weeks. As it was, the whole family was in town so we went to Houston to be with him. On Saturday, my brother and I spent the morning with him and I remained as my brother went home for lunch. After he left, I had the best conversation with my dad - even though he had had a stroke and couldn't speak. (He could squeeze my hand to let him know he understood.) I talked to him about all that you might imagine one would say at a time like this. Most importantly, I told him that even though we would miss him terribly - we would be okay after he was gone. I told him that mom (who died Sept. '09) was waiting for him & I knew he had missed her terribly and was ready to be with her; we were prepared for him to join her. At this, his eyes filled with tears. He actually looked up towards an upper corner of the room. I believe he could see my mom. I then made 4 phone calls to his brother and 3 sisters. I told them what was going on and that dad couldn't speak but he could listen. One at a time, they were each able to give their love to him and to tell him goodbye. I could tell by the expression on his face that he heard them. During the last phone call with his youngest sister, his expression changed and I suddenly realized that he had passed. I was at first shocked because I thought we had more time, but then I realized I had given him permission to die and I truly believe that made a big difference.

Marie, I only share this because you are praying for a quick end with little suffering. You have probably already had a similar conversation with your Mighty Oak. But even though I have only known you since I met you at this forum in January, I feel like I have known you AND Ed much longer. I thought there might be a small chance that he is hanging on for you and his love for you.

Finally, when my mom died ten years ago, I had no idea what the dying process was like and was really caught off guard. I wanted to be more prepared when my dad took this journey. I found the following link from Hospice that described both the "preactive" and the "active" stage of dying. I am including it for you in the hope that it will be helpful.

http://organizedwisdom.com/helpbar/index.html?return=http://organizedwisdom.com/Physical_Stages_of_Dying&url=www.hospicepatients.o rg/hospic60.html

You are both, as always, in my prayers. We are all with you in spirit even though we can't be with you in person.

With deep love, and respect ----- Alice
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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Old 09-22-2009, 06:52 AM   #20
RhondaH
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Angry Re: ~It Won't Be Long Now! Poor Mighty Oak!!~

Marie...peace for both Mighty Oak and you...HUGGS!!!!Take care and God bless.
__________________
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Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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