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02-04-2008, 09:55 AM
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#41
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Senior Member
Join Date: May 2006
Location: San Marcos, CA
Posts: 48
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So very sorry--please accept my condolences.
__________________
Mother/daughter bc patients (should have signed up for spa treatments instead of chemo! Who knew?)
Mom:
dx 2002 age 62
Stage IIIB, triple positive
FACx6, tamoxifen
2004 Stage IV, started Herceptin
mets to pleura, lungs, bone
tried Arimedex, Faslodex, Zometa, Navelbine, Taxol, Taxotere, Gemzar, Carboplatin, Abraxane, Xeloda
June 2007 new mets to nodes and pericardiam
Switched from Xeloda/Herceptin to Xeloda/Tykerb
September 2007 Failed X/T. Switched back to Xeloda/Herceptin, added Gemzar
Jan 2008 Taxol/Tykerb
Feb 2008 Tykerb as a single agent
Me:
dx 2007 age 38
Stage IIA pleomorphic ILC ER/PR + HER2 -
FACx6, tamoxifen
Mom to 2, ages 6 and 9
Trying to find a new hobby besides going to the cancer center.
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02-04-2008, 11:03 AM
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#42
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Dear Donna...
What can I say that we have not already spoke about??? I cannot imagine that flood of mixed emotions you must be feeling right now, I only hope that some of the support and prayers provide atleast a bit of comfort. You are certainly the 'golden image of a perfect caregiver'!! And Pat...well she was the meaning of what an Angel Warrior is!! I do pray for you, Donna and shall continue to hold you deep in heart. Both of you were so blessed to share such a love and I have always admired the spirit, the determination, the devotion of it. Pat will remain vibrantly alive in my memory and heart for my life, as you shall. As you enter this new chapter in your life, I wish for you all of the very best. May time heal you some in this needy point of your life.
Is there an obit that we could all sign on-line for Pat?? If there is and you have time please post it. It is something that many of us always do if available.
Take care Sweet Friend, thank you for letting me in and sharing this most personal journey with Mighty Oak and myself. Baby steps. All My Love To A Very Dear Friend>>Marie G
PS: You had earned your wings in the past....now you have your halo. You are an Angel Donna!!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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02-04-2008, 12:42 PM
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#43
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Dear Donna,
I am sure Pat's earthly energy is still swirling around and will be forever. My heart goes out to you.
Warmly,
Maria
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02-04-2008, 01:06 PM
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#44
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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I am so very sorry. I offer you my sincere condolances. May the Lord give you strength and comfort, and may Pat rest in Peace.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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02-04-2008, 01:39 PM
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#45
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Senior Member
Join Date: Jun 2006
Location: Wellington, FL
Posts: 68
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So sorry for your loss. I cannot find any other words. You are in my thoughts.
Ita
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02-04-2008, 03:32 PM
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#46
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Senior Member
Join Date: Sep 2005
Posts: 161
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I'm very sorry for your loss.
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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02-04-2008, 06:01 PM
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#47
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Senior Member
Join Date: Sep 2005
Posts: 95
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Donna,
I am truly sorry for the loss of your beloved Pat. My heart goes out to her and her loved ones.
__________________
Cynthia
Diagnosed 9/03 @ 43 years (pre-menopausal)
Her2+++
4 nodes +; High Grade
ER+/PR+
Bilateral Mastectomy; Reconstruction
CAF x 6; Radiation; One Year Late Herceptin
Oophorectomy; Arimidex
Completed E75 Vaccine Trial; Completed E75 Vaccine Booster Series
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02-04-2008, 07:06 PM
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#48
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Donna, I'm sorry for the loss of your dear friend. You have my prayers that God will show you the path to a peaceful heart. Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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02-04-2008, 07:31 PM
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#49
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I am so sorry to hear of the loss of your soulmate, Pat. I am glad to know she is no longer suffering and I hope the pain that you are enduring, begans to heal with time. I will be keeping you in my thoughts.
Vanessa
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02-04-2008, 09:33 PM
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#50
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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So very sorry as well. We would be honored if you keep in touch with us. Bev
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02-04-2008, 09:34 PM
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#51
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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 So sorry to hear of your loss. Hold your memories close to your heart and cherish them forever. May you find peace and solace in those memories.
In sympathy 
Joanne |
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02-05-2008, 10:13 AM
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#52
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I'm so sorry at your loss. Love doesn't die. In my belief, Pat's physical body stopped working, but her spirit and her love for you continue. I'm sure you are exhausted. Please take good care of yourself.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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02-05-2008, 10:44 AM
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#53
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Senior Member
Join Date: Sep 2005
Posts: 232
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Dear Donna,
Pat knows how much she was loved, so I hope you can find some peace with that knowledge. I think you know that you won't always feel this way... your heart will at some point heal, but right now everything is so raw and painful. I am so very sorry for your loss.
Please know that you are being sent love, hugs and healing prayers.
Karen
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02-05-2008, 10:59 AM
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#54
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Peace to you, dear friend.
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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02-05-2008, 11:12 AM
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#55
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Senior Member
Join Date: Jan 2007
Location: Massachusetts
Posts: 82
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Donna, my condolences on the loss of your soulmate. You are in my prayers.
__________________
IDC Stage IIIA
Diagnosed Nov 2006 (routine mammogram), age 51
Lumpectomy, lymph node dissection Dec 2006
3 cm tumor, 8 cancerous lymph nodes
Grade 3, ER/PR -, HER-2/neu +++ (by FISH, average 20 copies per cell)
A/C x 4, Taxol x 12, Herceptin x 47 weeks
35 radiation treatments
Completed treatment on April 3, 2008
Chest port removed October 2009
11 years since diagnosis NED
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02-05-2008, 11:01 PM
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#56
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Dear Donna, I'm sorry to hear you've lost your dear Pat, but also relieved that her struggle is ended and she's at peace now. You were a rock for her, and we'll be here for you whenever you need us. That you're still dedicated to helping the cause is an especially touching extension of your love for Pat, as I'm sure that she would want that very much. But also, take care of yourself and try to take a break for awhile, you've been in the front lines for a long time now and need to rest and greive.
Big hugs to you,
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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02-06-2008, 02:03 PM
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#57
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Member
Join Date: Apr 2007
Location: Southern California
Posts: 17
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Donna:
So sorry you have lost Pat. My best friend passed away in Oct 07 from colon cancer. There is solace in knowing there is no more suffering. May your pain ease with thoughts of your wonderful memories together.
Mary
__________________
3/16/07 dx DCIS - microinvasion - grade 1
lumpectomy - mammosite radiation treatment 4/07
Estrogen+ and Progestrone+ and HER2neu 3+
Started Herceptin 5/07 once every three weeks
Was On Arimidex -switched to Femara
Oncotype 23
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02-06-2008, 06:24 PM
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#58
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Senior Member
Join Date: Sep 2005
Posts: 77
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Donna, I am so sorry to hear about your loss. May God hold you in the plam of his hand.
Sincerely,
Carol
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02-06-2008, 06:55 PM
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#59
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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I will pray for comfort for you.
__________________
Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
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02-06-2008, 08:03 PM
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#60
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Others Truly Care, Donna...
Dear Donna,
I am so very sorry to hear about Pat passing on. Even though I knew from your posts that this moment was coming. It saddens me deeply that she has had to move on. Yet, surely she is at peace now. Free. And that must bring you much comfort.
I would imagine that Pat's wish for you is to embrace each new day, for her, and for yourself. That would be the greatest of tributes to her. When we love someone, that is what we always want for them -- to find happiness. I understand what a tremendous loss this is for you. May it ease your sorrow to know that Pat still IS. I believe the Soul continues on into a new way of being. In another dimension. And one day, your Soul will be reunited with hers, as you were always meant to be together. So you will be.
I pray you can find the strength to focus on the joy of your special relationship and how fortunate you were to have Pat be such an important part of your life. This is difficult, as we feel the empty space in our heart and naturally long for those we love to remain with us. Pat will always be with you though, and you with her. I feel she is just over your shoulder, a breath away. That you can still talk to her and sense her closeness.
I lost my beloved and dearest friend two years ago and I look up and speak to her often. Somehow a smile always comes to my lips. I think she hears me and knows how deep my love for her is. Pat knows your love as well, I have no doubt.
And how blessed Pat was to have you by her side, in good times and in the most difficult of times. That is a beautiful thing you gave to her. The most loving thing one human being can do for another. To be there in the darkest of times for them. It had to mean the world to her.
Of course you must stay *on board* with us. We are family. No one can understand as well. This home is a wonderful haven we have each discovered. Naturally you cherish this place. And stay close.
My arms are around you, sending you my love,
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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