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07-25-2007, 09:35 AM
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#41
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Joy to the World
Oh Joy
This is amazing.....and you are so deserving of that magic combo......heres to holding and cuddling with lots and lots of grandchildren for you!!!!!
You bring tears of joy to many with your good news!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-25-2007, 09:36 AM
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#42
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Senior Member
Join Date: Aug 2006
Location: Toronto
Posts: 64
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Happy dance, happy dance, happy dance!!!
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07-25-2007, 11:02 AM
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#43
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Senior Member
Join Date: Sep 2005
Posts: 95
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Joy,
We are all in this together. A victory for one is a victory for all. We are all rooting you on.
Congratulations, and may you continue to be healthy and Joy-ful for decades to come.
Cynthia
__________________
Cynthia
Diagnosed 9/03 @ 43 years (pre-menopausal)
Her2+++
4 nodes +; High Grade
ER+/PR+
Bilateral Mastectomy; Reconstruction
CAF x 6; Radiation; One Year Late Herceptin
Oophorectomy; Arimidex
Completed E75 Vaccine Trial; Completed E75 Vaccine Booster Series
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07-25-2007, 06:43 PM
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#44
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Wow Joy, that is awesome. Tykerb/Xeloda is really shaping up to be a winning combination.
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07-25-2007, 06:58 PM
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#45
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Love it....
Oh Joy I am so deeply happy to hear your news...
It is so thrilling to know your treatment is doing exactly what
we all want it to do!
God Bless,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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07-25-2007, 07:19 PM
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#46
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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OH JOY!
What wonderful news. Thanks for sharing it with us. Hope thrives!
________
Live Sex
Last edited by sassy; 08-22-2011 at 09:23 AM..
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07-25-2007, 07:31 PM
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#47
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Senior Member
Join Date: May 2007
Location: Eastern NC
Posts: 65
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YAHOOOO! I am so happy for you. Your news lifted my spirits so much, as I'm on the combo after finding 5 mets in my right lung 3 weeks ago. We've dropped the Herceptin, but finding those mets right after having Cyberknife in May for a medistinal met that had sprouted from the "ashes" of last summer's radiation for similar nodes, as well as having Gamma Knife in April for 2 brain mets... well it all left me a bit glum. Your news makes me feel so much more optimistic. Thanks for sharing!
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07-25-2007, 09:13 PM
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#48
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Senior Member
Join Date: May 2007
Location: Northern Michigan
Posts: 68
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Thank you for your posting!
Joy,
That is wonderful news girl! I am so glad to hear this for you. I too am my doctors first patient on this combo. I just started my 3rd round & we will rescan in about 3 wks. Unfortunitly I will be losing him as a doctor (he is moving to Chicago) and he will not be able to watch any of my progress after the end of August.
Thank you for the update, it gives the rest of us hope.
Keep up the good work!
Hugs,
Michelle
__________________
Sept. 2003- 5cm tumor in left breast Her2+ Er- Pr- grade 3,
Mastectomy & 11 nodes removed, all negative.
4 rounds A/C + 12 wky Taxol
25 rads
Dec 2006- recurrence Stage IV (diagnosed 3 days before Christmas!) Lymph nodes in chest, liver, 3 ribs
January 2007- 3 tri wkly rounds of Taxol/Herceptin
Response to lymph nodes in chest, but several more bone mets (skull, shoulders, more ribs, femur, several on spine), liver tumors still growing.
March 2007- 8 wkly rounds of Navelbine/Herceptin/ every 4th wk Zometa
Lymph nodes in chest look great, but more bone mets (of course!), Clavicles, hips, and sacrum (above tail bone) to add to the list. Liver mets still growing.
June 5- started Tykerb/Xeloda
Aug 14- Scans are showing great progress! Tumor shrinkage and bones are healing!
Nov 21 CT scan shows tumor growth in liver & bones next Doc appt on 11-27
Dire need of a lot of prayers and a miracle.
Stay at home mom, 5 yr old girl & 8 yr old boy.
Wife of loving husband
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07-26-2007, 04:55 AM
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#49
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Joy - I have a GREAT BIG SMILE on my face just for you!!!!!!!!!!!!!! But, please get Lupron shots to stop the period! My period came back on tamoxifen, and I wasn't able to remove the overies for several reasons. I get the shot once every three months and it just takes away such worry.
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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07-26-2007, 08:03 AM
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#50
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Senior Member
Join Date: Aug 2006
Location: Franklin, MA
Posts: 131
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Being a fellow stage 4 person (who also turned 40 this year), I LOVE reading news like this! The Herceptin has not failed me yet, but your post leaves me with so much hope for the "next weapon in the arsenal". I have been scared of what will happen when the Herceptin stops working because I have a great husband and a 7 year old and an almost 2 year old that need me. The Tykerb results that I have seen on this board give me hope that living to see 50 may not be such a crazy thought! Have a great day!
__________________
Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old)
Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted
Mets to liver, spine & femurs (thus being stage IV right from the get-go)
ER-, PR-, HER2+
Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol.
Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans).
Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks)
Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that.
June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007.
Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.
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07-26-2007, 08:19 AM
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#51
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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WONDERFUL,WONDERFUL Joy...so happy for you,Love Marcia
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07-26-2007, 10:23 AM
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#52
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Senior Member
Join Date: Jan 2007
Posts: 144
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Great News
So glad to hear things are going your way!
Keep on smiling!
Emelie
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07-26-2007, 01:35 PM
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#53
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Joy I could'nt be happier for you and many congratulations,I hope you continue to do so well and ned before you know it!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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08-15-2007, 01:10 PM
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#54
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Good grief! How could I have missed this one?
Dear Joy...Here you are soaring through the wind lifted up on the wings of a wonderful, better-than-expected report; and how thrilled I am to log on after a small absence to read such good news. When one of our sisters is happy....everyone is happy! Thank you for sharing such an uplifting report!
Love Kim from CT
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08-15-2007, 01:18 PM
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#55
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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Great news, Joy.
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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08-15-2007, 05:24 PM
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#56
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Member
Join Date: Jan 2007
Posts: 16
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I am thrilled for you and inspired by our/your optimism. We are all so lucky to be on the cusp of meaningful advances in the treatment of our disease. Thanks for keeping us informed of your progress.
Shad
__________________
 Shad
Stage 1 invasive ductal carcinoma 1/06, two tumors <0.7 cm, unilateral mastectomy 2/06. E+, P+, HER2+
Sentinal node biopsy negative (but 2 abnormal cells seen subcapsule in the first node).
4 rounds of A/C, 1 year of Herceptin.
1/07 Started on Femara - severe lethargy
4/07 Switiched to Arimidex - doing OK
5/07 DIEP free flap reconstruction with tummy tuck!
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