HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 06-05-2013, 10:36 AM   #1
Gerri
Senior Member
 
Gerri's Avatar
 
Join Date: Oct 2006
Location: Southern California
Posts: 900
Re: Hips are Good--Femurs not so much

Hi Sassy,

So sorry that you are going through such a painful time. I hope you find a solution soon.

I don't have any experience with Forteo, but thought I would share my experience with my bone health. I was on Tamoxifen for 2 yrs, then Femara for 4 yrs. Due to my osteopenia, I was receiving Zometa every six months. I was not improving so my onc and surgeon decided to take me off of Femara and Zometa and put me on Evista (raloxifene) to strengthen my bones. It is a SERM just like Tamoxifen, but for post-menopausal women. There have been several studies done (STAR, MORE) that show Evista promotes bone health and may prevent fractures. While it has not been proven to prevent recurrence of breast cancer, it has been used in post menopausal women at risk of developing breast cancer.

I did not really have many side effects when I was on Tamoxifen or Femara and the same goes for Evista. I do get leg cramps, which are a possible side effect, but something that I can deal with. I have only been on Evista for a little more than a year so I don't know if my osteopenia has improved or not. I'm sure my onc will order another bone density test at my next appointment.

Best of luck finding a solution to your problem.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
Gerri is offline   Reply With Quote
Old 06-05-2013, 12:14 PM   #2
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Hips are Good--Femurs not so much

Shoot! Sassy, sorry to learn of this further complication with your legs. You already suffered a stress fracture in your foot last year. Good move getting a new specialist to see.

The only member here I can recall on Forteo is SuzanW. But I think there is at least one thread on this drug, with others either starting it or interested.

Guess I lucked out with all the Zometa I was dosed with EVERY 3 WEEKS for quite some time! No problems with my jaw or elsewhere.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 12:16 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter