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Old 07-10-2012, 08:14 AM   #1
Jeanette
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Join Date: Oct 2005
Posts: 215
Red face Re: Question on xeloda/tykerb

Hello , I am on Xeloda and had a terrible time with feet. When I went on a cruise, I found this cream called Alhydran, made in Belguim, it was used for burn victims and after surgery. I used it as my feet got a little sun burnt. It is made from aloe and we went to the aloe factory in Aruba to get it. It made a world of difference, tried to get it in the US, but because of some silly regulations they can't sell it here. Even called Aruba and they can't ship it here. What does your wife use? Tks for any info, Jeanette
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Old 07-10-2012, 09:24 AM   #2
MJsHusband
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Join Date: Apr 2012
Posts: 87
Re: Question on xeloda/tykerb

MJ had extreme fatigue on Xeloda. Especially during the second week of the cycle. There were a few times where she just said she couldn't take it anymore and wanted to give up. Fortunately, she toughed through 4 cycles. Our onc wanted here to do 2 more but she said no. Fortunately, she didn't experience the hand/feet side effects that some get.
__________________

08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)

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