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Old 03-20-2012, 05:04 PM   #1
twosenuf99
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Join Date: May 2011
Location: Gloucester City, NJ
Posts: 73
Another bump in the road

Just a quick update..

Found a lump in my right "breast" 3 weeks ago. Still have expanders in and was about to start radiation this week. Doctor felt the lump and we did an ultrasound. She felt it needed to be biopsied so we did a needle biopsy today. They feel it is just a fat necrosis cyst from the mastectomy but after the biopsy i began to leak clear fluid from the site. Had to make an emergency appointment and apparently the dr doing the biopsy nicked my expander and it is now leaking inside my chest.. I see the ps tomorrow to figure out what we are going to do. If it is still leaking in the am they are taking it out and replacing it with a new expander.. If it seems to have stopped leaking they want to leave it and start radiation and hope it does not begin leaking later, since they can not do surgery on radiated skin..

Has anyone ran into this problem before???

Hope everyone is doing well..
Thanks for listening..
Tracy
__________________
Baseline Mammogram November 2010, found 2 suspicious calcifications (right side).
Second Mammogram April 2011, found 2 masses in the right breast, 1 in the lymph node and 1 in the left breast.
3 Biopsies May 11, 2011
Diagnosed right Invasive Ductal Breast Cancer which spread to my lymph node 5-13-2011.
Between Stage 2 and 3 with tumors grade III. ER/PR- but Her2neu+++
PET Scan clear
Breast MRI showed 2 masses in left, 5 in the right and 2 in the lymph node.
Biopsy of left mass benign
Joined clinical trial which required second biopsy of one of the right masses
Port placed May 27, 2011
Began Chemo (Taxol, Herceptin and Tykerb) on June 1, 2011 - September 12, 2011
Bi-lateral Mastectomy with reconstruction (expanders) October 3, 2011
FEC 12 weeks
Radiation 6 weeks
Herceptin 8 months finish September 2012
Exchange surgery August 3, 2012
Been NED since October 2011
Lymphedema right arm since Nov 2013
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Old 03-21-2012, 05:17 AM   #2
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Another bump in the road

Tracy,
Sheesh! Isn't it time for you to catch a break and have something be easy?! You poor thing!
A needle biopsy is no great treat to begin with...but this must be such a nuisance for you!
I hope everything works out quickly and easily, so you can get your radiation started and start feeling like the old you again!
Hope the kids are doing well!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 03-22-2012, 08:45 PM   #3
yanyan
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Join Date: Apr 2011
Posts: 403
Re: Another bump in the road

I hope everything will be ok for you Tracy! I am going through the same thing. Ultrasound didn't find anything but surgeon insisted on exsional biopsy yesterday. I am waiting for the path report. I also have expanders so he didn't want to do a punch biop in office in case of infection. So I had to be knocked out for an hour for them to do that. I figured even it is recurrence at least is local. It might get me another treatment that enventually prevents distant mets. Of course I freaked out at first. It lasted for 2 days.
As for the leaking, my non cancer side leaked. It didn't go flat completely. I think it will stop at some point. The leaking side feels very soft and natural. I think the concern is that whether the leaking will affect mapping. You may wanna let your radiologist know.
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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Old 03-26-2012, 07:56 PM   #4
twosenuf99
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Join Date: May 2011
Location: Gloucester City, NJ
Posts: 73
Re: Another bump in the road

Hey Denise
Thanks for the kind words. Biopsy claims its a fat necrosis. Have not had anymore leaking since last Tuesday but we think the expander may have shifted a bit. I will find out when I go for more rads pics and tats on Wednesday. Hope you are doing well. Let me know.

Tracy
__________________
Baseline Mammogram November 2010, found 2 suspicious calcifications (right side).
Second Mammogram April 2011, found 2 masses in the right breast, 1 in the lymph node and 1 in the left breast.
3 Biopsies May 11, 2011
Diagnosed right Invasive Ductal Breast Cancer which spread to my lymph node 5-13-2011.
Between Stage 2 and 3 with tumors grade III. ER/PR- but Her2neu+++
PET Scan clear
Breast MRI showed 2 masses in left, 5 in the right and 2 in the lymph node.
Biopsy of left mass benign
Joined clinical trial which required second biopsy of one of the right masses
Port placed May 27, 2011
Began Chemo (Taxol, Herceptin and Tykerb) on June 1, 2011 - September 12, 2011
Bi-lateral Mastectomy with reconstruction (expanders) October 3, 2011
FEC 12 weeks
Radiation 6 weeks
Herceptin 8 months finish September 2012
Exchange surgery August 3, 2012
Been NED since October 2011
Lymphedema right arm since Nov 2013
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Old 03-26-2012, 08:00 PM   #5
twosenuf99
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Join Date: May 2011
Location: Gloucester City, NJ
Posts: 73
Re: Another bump in the road

Yanyan
So sorry you are going through this undesirable adventure also. Hope your biopsy is good news. We are both strong people and I know we will get through this no matter what obstacle we have to jump over. Hang in there and keep me posted on your journey.
Tracy
__________________
Baseline Mammogram November 2010, found 2 suspicious calcifications (right side).
Second Mammogram April 2011, found 2 masses in the right breast, 1 in the lymph node and 1 in the left breast.
3 Biopsies May 11, 2011
Diagnosed right Invasive Ductal Breast Cancer which spread to my lymph node 5-13-2011.
Between Stage 2 and 3 with tumors grade III. ER/PR- but Her2neu+++
PET Scan clear
Breast MRI showed 2 masses in left, 5 in the right and 2 in the lymph node.
Biopsy of left mass benign
Joined clinical trial which required second biopsy of one of the right masses
Port placed May 27, 2011
Began Chemo (Taxol, Herceptin and Tykerb) on June 1, 2011 - September 12, 2011
Bi-lateral Mastectomy with reconstruction (expanders) October 3, 2011
FEC 12 weeks
Radiation 6 weeks
Herceptin 8 months finish September 2012
Exchange surgery August 3, 2012
Been NED since October 2011
Lymphedema right arm since Nov 2013
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Old 03-27-2012, 05:41 AM   #6
Pray
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Join Date: Apr 2011
Location: Michigan
Posts: 1,173
Re: Another bump in the road

Here's hoping everything goes well for you both Yanyan and Tracy, I'll be praying for you!

Denise do let us know how you are doing as well!
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