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12-29-2007, 01:47 PM
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#1
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Senior Member
Join Date: Oct 2005
Posts: 476
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A word of appreciation to Lani
This is the time of the year to summarize and account for the dedicated people who have devoted their energy to help others. I personally felt Lani deserves the honor for her tireless effort to educate, translate and convey her broad knowledge to many of us. I salute Lani and thank her for the year long contribution, making us more knowledgeable. Thank you, Lani.
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Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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12-29-2007, 03:37 PM
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#2
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hats off to you Lani and to all who make time to give to us all so much! ma
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MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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12-29-2007, 03:45 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Ditto...
your information and knowledge are GREATLY appreciated...thank you.
Rhonda
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Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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12-29-2007, 03:50 PM
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#4
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Senior Member
Join Date: Apr 2006
Posts: 131
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I agree with the above posts... thanks to you for your tireless work and efforts...you are a valuable part of this group of folks who have one object in mind ... to be able to conquer breast cancer...
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12-29-2007, 04:43 PM
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#5
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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<img src="http://www.millan.net/minimations/smileys/bokmal.gif" alt="Reading 2" />
Thank Lani
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12-29-2007, 05:00 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Thank you Lani, you are great!
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12-29-2007, 05:19 PM
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#7
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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My thanks ,too Lani!
marcia
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12-29-2007, 05:51 PM
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#8
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Lani,
Add me to that list of appreciative, thankful people.
You are so appreciated and I thank you for all you share with us.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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12-29-2007, 05:57 PM
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#9
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Senior Member
Join Date: Sep 2005
Posts: 232
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Thanks Lani...
Me too... thanks a million.
Karen
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12-29-2007, 06:59 PM
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#10
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Lani,
Thanks so much. I look forward to your posts. With two small children, I just do not have the time to do research. It is wonderful that you are so generous with your time.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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12-29-2007, 07:43 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Many thanks
When I come across a post written by you, I know it will be informative and helpful to whomever you are acknowledging. I also appreciate the summary that you write at the top of an article that translates the information into something that can be understood.
Sometimes an article is full of medical terms that read like Greek. Without your summary much of the article would be meaningless. Thanks for all of your time and dedication.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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12-29-2007, 07:53 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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Much deserved
accolades to you Lani. You are gifted and generous to share as much as you do with the rest of us. I admire your commitment and your knowledge.
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12-29-2007, 08:01 PM
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#13
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Senior Member
Join Date: Sep 2005
Posts: 556
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Lani, You are much appreciated for your continuous support to this board. You provide lot of upto date information and explain it when it is needed. Please keep up the good work.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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12-29-2007, 10:06 PM
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#14
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Senior Member
Join Date: Sep 2005
Posts: 589
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I echo these thoughts many times over. Lani, you are a MAJOR positive on this board..THANK YOU for all your time and consideration.
Eric
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12-29-2007, 10:18 PM
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#15
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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gracias !!!
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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12-29-2007, 10:20 PM
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#16
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Lani;
Thank you so much. I hate the thought but in the back of my mind it is a comfort to know that you are there .....just in case.
God bless,
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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12-29-2007, 11:13 PM
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#17
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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don't hate the thought, I am certainly not some vampire
I think you mean you just hope you don't need the info--I hope so too!
I just hope having the info in case you need it gives you some peace of mind.
Perhaps like having an umbrella with you, in some way it might "keep it from raining"!
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12-29-2007, 11:15 PM
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#18
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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by the way
Tusind tak (Danish for a thousand thanks)
In Denmark there are thousands of ways to say thank you (thanks for the day, thanks for the meal, thanks for the thanks)...but strangely, no word for please!
SO, thanks for the thanks!
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12-29-2007, 11:36 PM
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#19
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Thank you Lani for all you do!!
Hugs,
Lexi
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12-30-2007, 09:32 AM
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#20
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I appreciate all the studies and information you post for us here. For me, it is one stop shopping. Thank you so much
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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