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Old 08-28-2011, 10:55 AM   #1
Julie2
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Join Date: Sep 2005
Posts: 556
cold cap

Anybody tried cold cap while on chemo not to loose the hair? Does it really work to keep the hair?

Thanks,
Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 08-28-2011, 11:29 AM   #2
Ellie F
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Re: cold cap

Hi Julie
Tried a cold cap whilst having taxotere after my bc recurred. Whilst it didn't stop my hair loss completely( I kept about 40% but it was very patchy),what it did mean was that once I had finished it grew back really well just as before.My eyebrows and eyelashes have not recovered so I am pleased I did this for my hair as maybe that wouldn't have recovered without the cold cap.
Hope this helps
Ellie
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Old 08-28-2011, 11:49 AM   #3
BarbA
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Re: cold cap

Hi Julie. I used a cold cap almost twenty eight years ago during chemo following non-HER2 breast cancer. My hair got so thin on CMF plus Vincristine chemo that I eventually gave up on the cap. It lengthened my time doing chemo by a half hour and I was already the last appointment of the day (I had worked that day, teaching kindergarten), was tired and ready to get it done as quickly as possible. I ended up wearing wigs anyway. It seemed worth a shot to me, but I think it didn't do much. Hope that if you are going to do it, it works for you!
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Old 08-29-2011, 01:21 PM   #4
alicem
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Location: Colorado Springs, CO
Posts: 430
Re: cold cap

You can find more info on the cold cap here:

http://www.msnbc.msn.com/id/40718154...ep-their-hair/

http://www.dignitana.com/scalp_cooli...e_dignicap.php

Here is the blog by Heather Millar, the woman in the first article:

http://leftbreast.wordpress.com/?s=dignicap
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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