HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 12-26-2003, 08:28 AM   #1
Sandy
Guest
 
Posts: n/a
I know there are several out there on this treatment and am wondering how you are managing the joint pain? I will be starting this on Tuesday and doing it weekly. The doctor says I shouldn't loose my hair and the nurse says I will. I have my wigs ready just in case. I may go get my hair cut short. I have had my hair since last March so here we go again. My concerns are joint pain and neuropathy of hands and feet and chemo brain. I was on Taxol before and it got really bad by my 5th treatment never did do the 6 one. I will only have the steriods a couple of times then will stop them so that is one less thing I will have. Hugs, Sandy
  Reply With Quote
Old 12-26-2003, 12:08 PM   #2
Linda in Calif.
Guest
 
Posts: n/a
Hi Sandy: I was on Taxol/Herceptin and suffered with significant joint pain. I know it doesn't sound like much but a couple of Ibuprofin really helped out. I started experiencing numbness in my fingers and feet from the first treatment. It got to where I had some difficulty doing the buttons on my clothes but I just compensated for things. I held things carefully so I wouldn't drop them and moved a little slower than usual.
I had 4 treatments ending in Dec. of 2002 and just recently my feet are back to normal. The feeling in my hands came back faster than my feet...they only took about 5 months to be back to normal. I had lost my hair doing the A/C portion of my treatment before the Taxol so I can't say for sure about hair growth. I certainly didn't start to grow any hair during my Taxol treatment. My hair is about 6 inches long, now. That took about a year to grow. Hope everything goes well for you. Keep us all updated. Take Care, Linda
  Reply With Quote
Old 12-26-2003, 02:22 PM   #3
Linda in MI.
Guest
 
Posts: n/a
Sandy,

Try taking 200 mg. of vitamin B6 for the neuropathy. ALso, I put glutamine powder in my protein drinks which should help too, as well as help with stomach problems and nausea.

Hope this helps.

Blessings and Hugs,

Linda in MI.
  Reply With Quote
Old 12-27-2003, 08:30 AM   #4
Lolly
Guest
 
Posts: n/a
Sandy, I took extra B vitamins while on Taxol, and also my onc prescribed Neurontin, which I would start as soon as I got home from a treatment, and would continue with for up to a week after, along with Tylenol if necessary. It's been almost 4 years, and the only residual effects seem to be occasional slight numbness in the ends of my index fingers and thumbs, and occasional muscle cramps in my feet and calves.
Don't know if I would have had these anyway, but thought I'd pass this on as I seem to remember some of the others have taken Neurontin also.
hugs,
Lolly
  Reply With Quote
Old 12-28-2003, 07:37 AM   #5
Priscilla
Guest
 
Posts: n/a
Dear Sandy: I hesitate to offer this advise because so many do not understand it or how it works, but coffee enemas can really help a lot of pain by helping your body to eleminate toxins through the bile ducts before they do too much damage to your body. You must balance them with Juices to keep your electrolites in balance. You can go to www.gerson.org for more info or work with a doctor that uses these type therapies. The coffee enemas really work for me.
  Reply With Quote
Old 01-03-2004, 05:48 AM   #6
Lindaw
Guest
 
Posts: n/a
Dear Linda
what sort of stomach problems did you have?

Lindaw
  Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 10:20 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter