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05-16-2007, 06:10 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Completed Herceptin this evening...
Dear Sisters,
Many thanks to all of you for your support, guidance and humor to guide me
through the year of herceptin.
This year went by so fast...and I have learned so much (thanks to this
forum) I must say that we are all so lucky to have each other and this
site.
Big Hugs and Kisses to Joe and Christine!
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-16-2007, 06:36 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Jean, Big Congratulations! Its so amazing how you first start your chemo and herceptin treatments and you imagine how long it will take to get through all of it. But it sure goes by faster then one imagines...doesn't it.  I am glad you have this all behind you. Many wonderful wishes for a long happy road dancing with NED by your side. (Hope your hubby isn't the jealous type.) lol Go celebrate a bit...you certainly deserve it girl.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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05-16-2007, 06:45 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I'm happy for you that your herceptin is finished. Life goes on...................enjoy each and every day.
Love & hugs,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-16-2007, 06:50 PM
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#4
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Jean,
I hope you won't be leaving us. We have plans for you.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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05-16-2007, 08:07 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Joe....Never....
Ever!
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-16-2007, 08:17 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Forgot....to tell you....
When I finished my herceptin my onc nurses all came out with a balloon
which read "YOU DID IT" Congratulations....
When my husband an I arrived home we went out back with my family.
I made a wish for all of us and released the balloon. My large American
Bulldog was leaping in the air to catch it as it started to rise. A good strong
wind lifted the balloon and off it flew. As you all know when you make a wish you have to keep it secret ....but you all can guess what it was.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-17-2007, 06:19 PM
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#7
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Senior Member
Join Date: Aug 2006
Location: Rowlett, TX
Posts: 138
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Congrats, Jean, on the NED scan and on finishing a full year of Herceptin! And thanks again for being SO helpful to me with info on TCH.
__________________
Janet in Rowlett Texas
Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007: Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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05-17-2007, 08:29 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Jean...You DID it!
Now for you to relax and enjoy MANY, MANY, MANY more years! God bless and Take care. BIG huggs
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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05-21-2007, 07:01 PM
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#9
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Jean,
Congratulations on completing your year of Herceptin. I just finished mine April 22nd.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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05-31-2007, 03:54 PM
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#10
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Senior Member
Join Date: Dec 2006
Location: Columbus, Ohio
Posts: 33
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Congratulations
Congratulation!!
I'll be joining your status in 2 weeks.
Susan
__________________
dx IDC @ age 39 Feb '06
stage 2 er/pr-, her2+
neoadjuvant chemo 4 A/C completed April '06, 12 weekly taxol/herceptin completed 8/06, lumpectomy 8/15/06 NED!
33 rads completed 10/06
weekly herceptin thru May 2007 --Stopped herceptin 4/07 due to drop in LVEF. Started Herceptin again 5/07
Final Herceptin 6/12/07
Port Removed -8/13/07
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05-31-2007, 11:55 PM
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#11
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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All the BEST to you....
Jean,
A huge congratulations, hugs, and kisses to you. I am so happy for you that you did it all!! I didn't realize you had this thread going until tonight. I absolutely LOVE that story about the balloon. Thank you for being there for me too. You have made a huge difference in my ability to hang in the positively.
Harrie
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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06-01-2007, 08:32 AM
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#12
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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Yahoo to you!! I am excited for the day when I can post a message like that!!! CONGRATULATIONS!!!
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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06-01-2007, 09:52 PM
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#13
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Senior Member
Join Date: Nov 2005
Posts: 943
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Good going and yipee.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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06-02-2007, 12:01 AM
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#14
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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I read your story
Dear Robin:
It's unvelievable that nothing could detect your cancer. A friend of mine has had for about 8 months nipple discharge and a bump on the nipple area, she had an ultrasound and the needle biopsy, (I believe you had the needle biopsy done, right?); she was diagnosed as having fibrosis of the breast, but I doubt it very much, I have read and have witnessed so many cases that I do not trust these diagnostic tools anymore. I'm not sure if I should say something to my friend; who in the first place went to the doctor at me insisting, she's the type that believes that the less one knows, nothing bad can happen.
She' sbeen scheduled to go back for a check up in three months; she has about 1 1/2 months until the appointment, so maybe I will wait, I really do not want to intrude in her affairs. Again, she does not want to know anything; if is going to be bad news. SHe's very apprehensive even about small things.
I'm honestly very happy for you. What a shock this must have been for you and your husband, considering you both are in the medical field.
I'm also glad you continue being a member of this site, even though you now are considered "cancer free". CONGRATULATIONS on your 5th year mark!
With much love,
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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06-07-2007, 04:36 PM
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#15
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Senior Member
Join Date: Nov 2005
Posts: 943
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Adriana Mangus, thank you for your post above about my story. I'm so glad that God has protected me and given me the precious time he has on earth, despite my delayed diagnosis. You see, I had a negative ultrasound, mammogram, so called negative breast exam and so called benign needle biopsy. After my misdiagnosis, I learned that my needle biopsy was misread as benign when it was cancerous. Additionally, probably my breast ultrasound and physical breast exam were misread as normal when they were suspicous and positive for cancer too. My surgeon made horrible mistakes and should have done a core or excisional biopsy, as they are more reliable than a fine needle aspirate biopsy.
I would tell your friend to get a second surgical opinion and at least two pathology opinions on any biopsies as soon as possible. You may want to let her know that core and excisional biopsies are much more reliable than fine needle aspirate biopies. However, no biopsy is reliable if the person getting the specimen does not get tissue from the lump and the pathologist is unable to examine tissue taken from the lump itself. Furthermore, not only do sampling errors occur, but pathologists can and do misread properly sampled breast biopsy slides.
While it MAY not be wrong for a doctor to suggest that a lump be followed for a short time to see if it resolves, if a lump persists, it should be removed, or at the very least have a repeat biopsy. Needle biopsies are good, but one always has the option to demand that the mass be removed, which in my opinion ,after being screwed, is the safest path.
You may also referr your friend to this website:
http://www.2minutebreastexam.com/true-stories/
Give my story too to your friend:
<o></o>
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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06-07-2007, 07:30 AM
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#16
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Oh Goodie Goodie
Great Job Sweetness, we will have you in our prayers as always.>>Waiting For A Miracle>>Believe51..(Marie G)
9-06 Hubby dx w/Stage IV inflammatory Breast Cancer w/bone mets
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