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View Poll Results: What Night and Time is Best for you for the Moderated Chats
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Monday at 8 pm Eastern Time
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5 |
20.83% |
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Monday at 9pm Eastern Time
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2 |
8.33% |
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Monday at 10pm Eastern Time
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4 |
16.67% |
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Tuesday at 8 pm Eastern Time
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3 |
12.50% |
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Tuesday at 9pm Eastern Time
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1 |
4.17% |
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Tuesday at 10pm Eastern Time
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6 |
25.00% |
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Wednesday at 8 pm Eastern Time
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3 |
12.50% |
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Wednesday at 9pm Eastern Time
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3 |
12.50% |
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Wednesday at 10pm Eastern Time
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3 |
12.50% |
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Thursday at 10pm Eastern Time
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3 |
12.50% |
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01-16-2007, 08:15 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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What Night is Best to Start Up the Chatroom Again
I stopped the chatroom because Sunday night is just too hard with trying to get my kids ready for school etc. I really do want to do it. Please take the poll and let me know what's best for you. If something else is good (time), please respond to this message.
Thanks
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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01-17-2007, 06:19 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Hi,
I'm in France so totally out of your time zone. Would it be possible to ask in advance a question as they do with breastcancer.org??? If not, I understand. Love the site and appreciate all the members.
Sarah
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01-17-2007, 06:47 PM
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#3
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Question
This is not about the moderated chats, I did vote but whatever the majority wants, I will just make time to participate. Yo are doing a wonderful Job, Becky.
Now, the question is, how do I place my picture on the site? I have a picture on my computer which I tried to place it on it, and kept getting a message that it was too big, and it provided me with some measurements for fitting it into the system. Do I take a card and place it in the computer, Do I take a new picture?
Any help will be very appreciated. Thanks.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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01-17-2007, 09:08 PM
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#4
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Becky
Can I wear flip flops to the chat room???
Adriana
send the pic to Joe via email and he can size it for you.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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01-18-2007, 09:44 AM
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#5
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Poor Becki
Talk about a poll that gives NO ANSWERS! lol - hope this clears up as you get more responses. With the diversity of the poll responses I would say (even though I voted for "my" night") that it looks to me like what night is best for you!
And Sheila - ever thought about buying stock in a flip flop company?
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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01-19-2007, 06:00 PM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Mel
I am going to need to if I remain on Xeloda....I feel like I am walking on hot coals!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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01-21-2007, 08:33 PM
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#7
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Chat room. I have never been to a chat room, but once you start it up, I will give it a try. I too am trying to get my picture to attach to my posts. I have it on my profile. Will take Shelia's advice and email my picture to Joe. I want you all to see me in my cute wig.
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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01-23-2007, 08:44 AM
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#8
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Senior Member
Join Date: Sep 2005
Posts: 312
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Most any time is good for me though I did vote for Monday.
__________________
Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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01-31-2007, 11:38 AM
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#9
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Senior Member
Join Date: Jun 2006
Posts: 44
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Hmmmmm...let's see, I'm on West Coast Time, so I'm flexible
Hey Becky-Girl,
Being on the Left Coast and three hours earlier makes it easier on me. Of course, I'm a "24" and "Prison Break" watcher on Mon. and I love the "Office" on Thursdays. Plus, I tape "Men in Trees," so whatever works for the most people, will be fine. Funny, I've just listed all these shows, and I really don't watch television much and have music on right now (The Beatles today on this overcast and rainy day).
Talk soon.
Love,
Vicki
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02-19-2007, 09:10 AM
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#10
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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Chat Room
Hi, I am new to this site however, I have been chatting on breastcancer.org for a while and the chat room is LIVE 24/7. Is this site going to have limited chat times?
Thanks, Betty
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03-11-2007, 08:47 AM
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#11
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Senior Member
Join Date: Feb 2007
Posts: 108
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Any of you from the west want to chat?
I would love to join the chat but it seems most everyone is on eastern time. I am out here in So Cal and even an 8pm start on eastern time means an 11pm start for me. If there are any others out this way maybe we could start a chat on western time?
__________________
Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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03-11-2007, 11:28 AM
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#12
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Erin,
Think again. It will actually be 5P.M. your time. I am on Mountain time and sign in at 6 P.M.
Love & hugs,
Marlys
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03-11-2007, 04:25 PM
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#13
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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I will be willing to chat @ anytime! I am eastern standard time.
Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-13-2007, 11:31 PM
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#14
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Senior Member
Join Date: Feb 2007
Posts: 108
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OMG! You are right!
Chemobrain strikes again :-( I can't wait until all this is over and I can think straight again......
__________________
Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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03-14-2007, 05:01 AM
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#15
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Senior Member
Join Date: Feb 2007
Location: California
Posts: 27
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I am out in California but it is 4:49am and I am still up reading and surfing as I am still not sleeping well...... lol I would love for people to log into chats all the time....I have just joined this site a month ago or so and I have logged into chat every time I have come and have yet to see anyone ever logged into chat. I also have yahoo instant messenger.... george_and_trish@sbcglobal.net anyone can add me and say hi or pass on your yahoo id and I will add you and say hi
__________________
Tricia Velasquez
Bakersfield, Ca
dx Jan 4 2007
er+/pr- her2 +++ Stage 3b
several tumors
largest 7cm
port placed on Jan 18, 2007
Chemo started Jan 22, 2007
Herceptin/ Taxol every 3d week and then my Dr changed me to Taxotere/Carboplatin/Herceptin
every 3d week
Right Mastectomy w/ Lymph Node Dissection 4/19/07
27 removed 9 positive
Margins-clear but wall to wall
Radiation scheduled for 6/07
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03-31-2007, 02:47 PM
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#16
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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I work Tues eves and hope to golf on Wed eves this summer, so Mon or Thurs would work best for me. Peace, Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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