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Old 05-10-2010, 02:46 PM   #1
tricia keegan
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Question Five years out???

I've noticed in the past few months many of us posting having reached the magical five years.

I hopefully will celebrate this next month, herceptin had just been approved here in Ireland a week before I was dx in the summer of '05 so I was very fortunate.

It got me thinking, I know it'll be a while yet before we have study results on the change (if any) this has made to the number of people who recurr with her2+, but thought it may be interesting to see how many of us here have (or about to) reached this milestone.

If nothing else, I'm sure those of us who do may give confidence to those newly diagnosed her2+.

I find myself hoping herceptin really has made a huge difference in adjuvant treatment, not just in print but in actual lives. Please post if you're almost five years or beyond with no recurrance

Tricia x
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 05-10-2010, 05:27 PM   #2
Audrey
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Re: Five years out???

Happy to report that I was diagnosed in the summer of 2001 and am almost 9 years out with no recurrence! I think Herceptin has made a huge difference and am soooo grateful.
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Audrey

diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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Old 05-10-2010, 06:44 PM   #3
Laurel
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Re: Five years out???

Long way from 5 years here, Tricia, but thought I'd chime in that I just had my 2 yr cancerversary on the 9th, nice Mother's Day present for me this year! NED times 2! Hoping for 30 more!

Fun post, thanks! Congrats to both you and Audrey!
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 05-10-2010, 07:02 PM   #4
caya
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Re: Five years out???

Congrats ladies! Every year is a milestone now!!

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 05-10-2010, 08:49 PM   #5
Catherine
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Re: Five years out???

I will be 5 years out from DX next April 2011. So I am on my way to 5 years. I, too, hope that Herceptin was the magic many of us needed.

Tricia...happy for you and your 5 year mark next month. Is 5 years still a "mark?" I am not making a joke....I am just not up-to-date on the terminology. In the olden days, 5 years was always the "good mark" to reach and feel somewhat confident that you could "relax."

All the best,
Catherine
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 05-10-2010, 10:49 PM   #6
mcgle
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Re: Five years out???

Will reach the 'all clear' 5 year mark in November; no recurrence as yet! But I am an anomaly in that I received neither chemo nor herceptin, in spite of being weakly HER2+. Think it was the right decision now, though anxious at the time - the medics thought it would be 'a nonsense' to throw the heavy guns at a strongly hormone positive tiny tumour, in spite of its HER2+ status.

Mcgle (UK)
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Old 05-11-2010, 12:02 AM   #7
Jean
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Re: Five years out???

Tricia,
I have been wondering the same thing the last few weeks. I wanted to know the number of women who have been dx. and received hercpetin and have had no recurrence and have reached a milestone such as min. 5 yrs. Then we could also total those 5 yrs. out who have Not had herceptin.

So lets start adding them up..certainly we should see some impressive numbers?


Mcgle (getting close to 5 yr. on 11/10 yea no herceptin)
Catherine (getting close to 5 yr. 4/11 yea - herceptin)


Tricia 1- 5yrs out - herceptin
Audrey 1 -9 yrs. out - herceptin (in trial)
Jean 1 - 5 yrs. out -herceptin

total of 3....min. 5yrs. out no recurrence NED with hercpetin.
.please continue to add onto this number if you are 5yrs +...and no recurrence/and NED...

PS Laurel....Congratualions on hitting the 2yr mark! What a great Mother's day for you. Wishing you continued years of NED....now onto 3,4,5, 6, 7, 8, 9, 10 - well you get the picture
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006

Last edited by Jean; 05-11-2010 at 12:18 AM..
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Old 05-11-2010, 05:17 AM   #8
tricia keegan
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Re: Five years out???

Thanks for commenting everyone, and Audrey congrats to you at nine years!

Laurel, every year is a milestone and I hope you enjoy and celebrate your two years, many congratulations!!!

Catherine, I'm really not sure if five years is a "mark" but it feels like one to me! I noticed Steph mentioned in another thread that after five years the risk of recurrance is reduced a little but maybe someone else knows more?

Mcgle, it's interesting to know you did not have herceptin and I wonder if many other's did not have it but still NED...

Jean,I'm sure it's something many of us have wondered about and it'll be interesting to note how many additions we get posted here
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!

Last edited by tricia keegan; 05-11-2010 at 05:20 AM..
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Old 05-11-2010, 06:20 AM   #9
Diane H
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Re: Five years out???

I'm five years out this spring, and looking for 50 more! Big collective hug out to everyone

Diane
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Old 05-11-2010, 07:59 AM   #10
Vi Schorpp
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Re: Five years out???

Hi all: It was 7 years for me April 6, no herceptin. I love these milestones.
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3.5 cm, 0/19 positive nodes
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Her2++, ER & PR++
RB Mastectomy, 4 AC,
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Old 05-11-2010, 03:33 PM   #11
lkc Gumby
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Re: Five years out???

I am 5 years out this month! Herceptin rocks. NED
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 05-11-2010, 04:22 PM   #12
bashmaz
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Smile Re: Five years out??? 8 years here!

Hi - I'm just over 8 years (April 5 2002) - no recurrence and no Herceptin. Doing very well.
Good luck to all on reaching this milestone.
-Marianne
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4/2002 Diagnosed @ age 47: 1.8cm, 1+ve node (of 27)
Her2+++, ER-/PR-; 9/9 on Bloom-Rich. scale. "Poor prognosis" written after every result on my path. report!
ACx4, Taxolx4, finished 10/2002 and then 37 rads.
2004 - Clinical trial (vaccine) @ UW, Seattle
2007 - clinical trial Tykerb (on placebo?)
So far, so good!
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Old 05-11-2010, 04:34 PM   #13
newgg
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Thumbs up Re: Five years out???

Rollin in at 6 years in June....triple pos. Finished initial chemo and did battle for herceptin a year later...YES !! A quote I found: " when Kismet hits you hard, it is life affirming to HIT BACK" !!
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Old 05-12-2010, 05:11 AM   #14
Susan
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Smile Re: Five years out???

Hi All: It's 5 years out for me this week! No recurrence! I have my mammogram, and chest x-ray, blood work next week and see the oncologist the following week. I hope to cut loose from the every 6 months exam. I'm feeling great, and it all seems like sooo long ago that I was diagnosed.
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IDC, Stage 1, Grade 3
Oncotype Dx Score 40
Her2+++ E+P+
Lumpectomy 5/05
Re-excision 6/05
4AC
33 rounds of radiation
1 year Herceptin (had to quit after 8 months, due to low muga scores)
Faslodex until 11-07
Hysterectomy with ovaries 11-07
Arimidex 12-07 switched to Aromasin 10-09
Quit Aromasin 11-09 due to joint pain
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Old 05-12-2010, 05:37 AM   #15
PinkGirl
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Smile Re: Five years out???

Count me in .. 5 years for me in August. Feel very lucky to have
had Herceptin as an early stager ... approved in Canada right when I
was diagnosed in 05
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 05-12-2010, 08:07 AM   #16
Becky
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Re: Five years out???

I am nearing 6 yrs with no recurrence!
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 05-12-2010, 09:04 AM   #17
Kat
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Re: Five years out???

hello, all! I, too, am about to be 5 years out and NED! I was diagnosed July 2005. I didn't think I'd live. I'm so grateful to God, and all the fine doctors and nurses. Onward, everyone! kate
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Old 05-12-2010, 11:29 AM   #18
Morgan
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Re: Five years out???

Me too! 5 years in June and no recurrence.............
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Old 05-12-2010, 02:30 PM   #19
schoolteacher
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Re: Five years out???

I love hearing all this good news. All of you are truly wonderful. Thanks for the encouragement.

Amelia
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Old 05-12-2010, 03:15 PM   #20
tricia keegan
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Re: Five years out???

Thanks to everyone for your replies, I can't remember all the names but whats coming across here is so many of us surviving even after five years, with and without herceptin

That has to be great news to all reading this, and a special mention to Susan celebrating her five years this week! Many congrats Susan !

I had a feeling when starting this thread there were many of us out there, I'll give it a few days and count the numbers and see what we get to! Thank you again to everyone.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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