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Old 07-26-2010, 11:12 AM   #1
Delaney
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Join Date: May 2010
Location: Ireland
Posts: 271
Unhappy Blocked lymph node anyone?

I saw the oncologist today, have been changed from taxotere/herceptin to tyverb/xeloda because skin mets were increasing big time. The doctor thinks I may have a blocked lymph node because my remaining breast is swollen, a bit hard to the touch and I have very stiff feeling there and under my arms. So I will get a CT scan. Anyone had this problem? I still cannot have herceptin because my echo today showed heart function improving but still 5% less than they would like. Am a bit fed up tonight, opened a bottle of red wine - might feel better soon!!!!!!!!!!!!!!!!!!
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 07-26-2010, 10:07 PM   #2
CarolynME
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Re: Blocked lymph node anyone?

Delaney,

I am really sorry you are having to deal with all this. I know you mentioned that you cannot have herceptin because your heart function is less that 5% than they would like - I have read other's posts where they mention taking CO Enzyme Q10 to raise their MUGA level and keep it up - have you talked with your doctor about this?

I am sending prayers and hugs your way.

Love,

Carolyn
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1/10 Diagnosed with IDC; 3.7 cm tumor
3/10 Left Radical Masectomy; 2 /16 nodes positive - Grade 3 ER+/PR-/HER2+++
4/10 BRCA1 and BRCA2 both negative
4/10 Pet Scan showed another node .07mm positive on the internal mammary area
4/10 ALLTO Trial - randomized for Arm 4 - Taxotere/Carboplatin and Herceptin only (no Tykerb) Began 6 cycles Taxotere/Carboplatin (every three weeks) and Herceptin weekly for eighteen weeks and then every three weeks until the end of April 2011
Radiation to begin 9/2010
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Old 07-27-2010, 02:27 PM   #3
mmoons
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Re: Blocked lymph node anyone?

Delaney,

No advice but sending you huge prayers and hugs. I am sure you are fed up...who wouldn't be. This disease SUCKS! How was that wine? Delicious and therapeutic, I hope!!


You are in my thoughts!

Maureen
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My loves

IDC & DCIS, HER2+++ Diagnosis: October 1, 2008
  • Tumor: 6.8 centimeters, never showed on mammograms
  • ER-/PR-
  • November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
  • Stage IIIc
  • Lapatinib Clinical Trial start: November, 2008
  • Surgery: May 5, 2009
  • Started Herceptin: May 19, 2009
  • Started Radiation (33 rounds): June 10, 2009
  • September 2009: Moved to Michigan to be closer to family
  • 12/09 - still on Herceptin until May 2010
  • August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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Old 07-30-2010, 02:58 PM   #4
tricia keegan
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Re: Blocked lymph node anyone?

Hi Delaney,

No advice here either but the wine sounds a good idea to help you relax

((((hugs))))
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 07-31-2010, 08:13 AM   #5
Delaney
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Posts: 271
Re: Blocked lymph node anyone?

Thanks all, am tolerating tyverb/xeloda quite well, getting the hot hands and feet now, have always had cold hands so makes a change for me. Maureen, the wine was gorgeous! , but no more for me now, afraid to mix it with these drugs. Just hope they work, otherwise am in big trouble.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 08-01-2010, 03:39 PM   #6
tricia keegan
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Posts: 3,463
Re: Blocked lymph node anyone?

Delaney, I've heard some of the ladies on xeloda mention a cream for the hand/foot syndrome, try the search feature for tips, I think it was called Udderly smooth or something like that but they said it helps to moisturise a lot
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 08-02-2010, 08:43 AM   #7
Delaney
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Join Date: May 2010
Location: Ireland
Posts: 271
Re: Blocked lymph node anyone?

Thanks Tricia, googled it, seems only on sale in USA and Canada but will check into it more. Wont forget it with that very distinctive name anyway. Thanks, Helen.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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