Care Page Love Letters
LESLIE HAS STARTED A PAGE AT CARE PAGES. IT IS CALLED lOVE LETTERS. It's a place where you can create a page for your friends and family to keep up with how you are feeling. It's a wonderful idea, when you don't feel up to "talking". Before bc, I had no idea that "talking" demanded so much energy and strength. I used to think emails were impersonal, but they need not be -- with your personal energy appearing in black and white. My sister and niece and friends tell me when they read what I write to them -- they can actually hear me talking. Is it my style? I don't know. I talk w/my hands and am told I'm dramatic. I CAPITALIZE and use bold face, !!!!!s et al... I put my love in to every word, liking cooking (which I no longer do) -- putting a bit of yourself in with all the ingredients.
LESLIE -- how do we get there from here?????????????
I met Leslie through CONTROVERSIAL TOPICS, a thread I started 6/7. She astounds me w/her profundity!
One of her quotes that she has shared w/the above thread posters is from Martin Alberto Filches -- "IN THE WORLD OF DESTINY, THERE ARE NO STATISTICS". Write it down on a brightly colored piece of paper and put it in every room of your house as a reminder. We are each potential miracles. Every thought is like a prayer. Every prayer is a potential miracle. Love you all, my sweet Soul Sisters... ANDI
BTW -- my mammog was NORMAL. Scans 6/28. Hubby home from hosp. Life is sweet!!!
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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